Sunday, February 28, 2016

Apostle of Lost Causes

I am the apostle of lost causes. Whether by the dumb luck or circumstances I am usually counted as the one or a member of a group whose agenda has no chance of succeeding. In grade school I always support of the Indians or whatever minority group seem to need support. I felt I need to support these causes since nobody else would. Even though I did not like sports I am here and with support of the underdog because I felt sorry for the crew. I don't know why I did this I suppose it was just a calling.

Later as a person with a disability, I was the group who is disenfranchised. Of course did not notice this at first but as life went along and I got into high school and college / University I begin to see the affiliation. Everything from being locked out of major events, classes and employment because of architectural barriers to a less than active social life because of the stigma of disability. Now I once again I'm sensing the same isolation in the political arena. Yesterday Dianne and I attended at Bernie Sanders rally / March here in Salt Lake City.

It was a beautiful day, it looks like spring is getting a hold on the local environment. Warm enough to venture out without tons of clothing and basking in the Sun felt wonderful. Dianne swing by the SNF and pick me up and we went down to the Trax station to catch the train downtown. The day was perfect, and we decided to link up with the rally as a past attract station downtown electing not to go to the beginning of the rally. We were a bit concerned. We were a bit concerned because we ended up waiting for about 35 minutes before the marchers finally reached us . Finally however, they showed up and we blended in with the group.

The March was good, I had forgotten how energizing the group people all for one cause can be. I have been involved in several marches over the course of my life but done recently. Just kind of tough marching with a group of people when you're in a power chair because all you really see is a sea of butts and boobs. You have a sense of the power all around you but you can't see it as much as the able bodies can. We marched and marched but seems like forever but only for a 5 Salt Lake City blocks until we got to the City County Building. You left the group at that point and headed to get something to eat. We were kind of shocked as we backed out of the rally to see how small the group was. The group seemed so much larger on the city streets hemmed in by sidewalks in the buildings. Is a large area however our group diminished significantly. We once again or I went again saw that I was part of a disenfranchised group on the whole. The March provided a goodtime time it was great getting out of the SNF. But the news shut up best when they reported how badly Hillary had beaten Bernie in the South Carolina primary. Yes, I am the apostle of lost causes.

Friday, February 26, 2016

Long Way Home




 The last couple days the weather has just been spectacular here at the skilled nursing facility. True to form I I wanted to enjoy this great weather but there's not many places I can go in this neighborhood. I do not think to ever will be much to visit in this area since it's mostly industrial. However, there is a great deal of building going on in the area who knows what else might move and I must admit there is the ever-present Utah Transit Authority bus. not too far from the front door. There is also  a Trax station not too terribly far from the front door either so if a person really want to go ranging they could do it with a full charge and personality willing to explore.

Maybe 2 weeks ago i ranged for the first time as the good weather first began to show itself. I knew there was a Winco Market in the general vicinity but wasn't quite sure exactly where so I took off to try to find  the market. I got the general directions from janessa at the front desk and I took off. It seems like a great deal of distance to get to the market I had to actually go around but seems like a couple blocks but I eventually  got there winding up  at the back of the market. I went a couple more times if familiarity with the region clapped I thought was a long time into a short jaunt. So yesterday with the good weather I actually spent a few minutes on the front porch of the SNF and realized the market was actually straight across an extensive mass of building that was going on I was somewhat tantalized with the idea that I might be able to just cut straight through the area to get to the market.

The area looked to be surrounded by sidewalk which is a good sign,it looked that way was not,  there was a ssignificnt gap but still I could used the hard packed ground to make it,still it was it was a active construction sight. I was sitting thede contemplating my next move I noticed a yellow hard hatted construction guy was making his way in my direction.  I was not sure he was headed to me so I just sat there looking interested in the  work site and sure enough he stopped in front of  me. He was civil but firm. He letme know I was not welcome. He said I was lucky because I was talking with him and not the Supervisor. If the su The last couple days the weather is just been spectacular here at the skilled nursing facility. True to form I I wanted to enjoy this great weather but there's not many places I can go in this neighborhood. I do not think to ever will be much to visit in this area since it's mostly industrial. However, there is a great deal of building going on in the area who knows what else might move and I must admit there is the ever-present Utah Transit Authority bus. not too far from the front door. There is also  a Trax station not too terribly far from the front door either so if a person really want to go ranging they could do it with a full charge and personality willing to explore.

Maybe 2 weeks ago i range for the first time as the good weather first began to show itself. I knew there was a Winco Market in the general vicinity but wasn't quite sure exactly where so I took off to try to find  the market. I got the general directions from janessa at the front desk and I took off. It seems like a great deal of distance to get to the market I had to actually go around but seems like a couple blocks but I eventually  got there winding up  at the back of the market. I went a couple more times if familiarity with the region clapped I thought was a long time into a short jaunt. So yesterday with the good weather I actually spent a few minutes on the front porch of the sniff and realized the market was actually straight across an extensive mass of building that was going on I was somewhat tantalized with the idea that I might be able to just cut straight through the area to get to my destination.

The area looked to be surrounded by sidewalk which is a good sign,it looked that way was not,  there was a ssignificnt gap but still I could used the hard packed ground to make it,still it was it was a active construction sight. I was sitting thede contemplating my next move I noticed a yellow hard hatted construction guy was making his way in my direction.  I was not sure he was headed to me so I just sat there looking interested in the  work site and sure enough he stopped in front of  me.

The hard hat was civil informing me that I was lucky in that he was addressing me and not the Supervisor, who would be calling the cops and that I had better be getting on before the " Super"gets back. I thanked him profusely( not noting my sarcasm) and headed out. I kinda wish the super had been there on the site, I feel the encounter would have been interesting if not entertaining. The encounter would have given me a good story. So for the short time I have left here at Cascade on the River Walk I am going the long way to get to Winco .

Wednesday, February 24, 2016

There Is Only so Much Time...

I wish my tablet could load images up to my blog. I have sort of stopped taking images partly because this new chair does not have a place for me to store my tablet as my other chairs  once again let me remind the reader that the chair I am  now driving is more than a year old but still counts as the "new"chair for me.  I guess I could take you images with my cell phone it's just that retrieving my cell phone from a little side pack on my chair is quite a task by the time I get it out I've lost my urgency to take the picture. I hope that makes sense.

And to be sure this posting is not about the fact that my tablet can no upload images up to my blog. What this blog today is about all the nice guys / people that inhabit the dining room where I am staying. I think I'm sort of contradicting perhaps what I wrote earlier about me being a prick about not really going out of my way to engage people, expecting new people / residence at the facility. I have noticed after writing that earlier posting that I do continue to  meet interesting folks at my dinner table. I set up the same table every meal usually, a nice little table put sheets for just in front of a  gas fedfireplace. Its been on every day except Wednesday since I've been here. The fireplace is more than cosmetic it actually puts out a tiny wall of heat, sometimes so much heat that is almost uncomfortable to sit there but I do. I usually try to get to my table at the beginning of the dinner. Often I'm joined by someone rolling are walking by. this is of course then my then my wife slash Dianne stops by to have a meal with me, in which case we usually find a table we can be by our own.

I have been dining with just one other fellow lately since two or three constants went home a couple of weeks ago. And I have been nursing a nice chip on my shoulder thinking why try since I am leaving in a week? THEN earlier this week a new guy has entered the scene. STeve the other constant has been hit or miss lately. I am not sure what is going on with Steve but  the new guy the center of the picture lately. Interesting older  fellow with a definite New York accent, is kind of deaf and has a bit of a hard time speaking very loud but I can usually make out most of it statements. He was born and raised in New York City, Manhattan went to University and became an engineer is a had a life with Grumman, and Hercules. He is just an extra guy, someone who has entered my constellation and I feel directed to get to know him for whatever reason. So we are back up to a full table there are even a few other guys who look sort of interesting. I'm a bit ashamed because there are other folks I have sort of snubbed and even  cringed when they come around my table looking like dogs wanted to be petted are fed. I should be better.

 I have become pathetically selective with my dining guests after all there's only so much time in life.

Tuesday, February 23, 2016

Scrub A DUB DUB

I think it's very weird that I always get saddled with organizations that are going down the tube one way or the other. It's just strange I don't know how to categorize the feeling that I'm having as I sense the joint that I'm staying at systematically unraveling.

I sensed something was wrong this morning as I lay in bed and watch the daylight begin to creep through the window. It was much later then the 6 o'clock that I was expecting. I was expecting Brian this morning. yesterday I was expecting Katie but Brian showed up. KD being out of the picture now for a while but almost a week I really expected Bryan. but Brian didn't show I guess this morning leaving just a few people to do the floor. Brian not showing up this quite disturbing  the clothes that in the pile Brian always shows up Brian is dependable Brian doesn't make it to work then something is definitely wrong.

The real stressor is this  the people I have really relied on or no longer reliable. This means that I'm not me getting my clothes washed. I may have discuss this in this blog before I don't know but the agency of program or joint that I'm staying in sort of has a policy of not washing the residents clothes which i think is pretty bogus especially considering the price one pays the stay at this joint... Seriously over $4,000 a month. I know I know its not self pay but still it's because of you / me this we need meet but the company gets the money till what time to bust their ass a little bit more and wash the clothes when they need to be washed. I have been relying on the good works of the CNAs at disjoint to  clandestinely wash my clothes. But, for one reason or another all these. folks are gone. In fact last week I thought I'd had my clothes washed and I'm quite smoothly only to find heartbreakingly this week as I went to dress is the garments I went to put on we're dirty they were not washed. I can only imagine or what I want to believe is that the wash saturda pile never washed and when my next Confederate came to work thought the pile was cleaning clothes hold of them and put them back in my drawers. I would hate to think they knowingly try to recycle the clothes and not thought that I would not see the soiled clothes. Then again there's there's nothing I can say since staff is not supposed to wash the clothes anyway. If I complain I get the CNA and problems / trouble and maybe even me since I push them into breaking the company rules. I am just thankful I am a short timer here and soon I'll be in to my next phase.

I was bemoaning my plight when Tara the nurse walked up- - I thought I was a Deadman I thought the ruse was up but I was shocked when she agreed to have someone wash my clothes after day time staff left, taking me off guard. I will try to back away from the whole situation by asking what was the closest laundromat. Tara just calmly put my protest decide and assured me the project would be done. Just took a huge weight off my shoulders. I hate sneaking around doing stuff and then getting my clothes washed every week has been a major challenge. hopefully this won't be an issue much longer as I get ready to phase out.


rian is dependable Brian doesn't make it to work then something is definitely wrong. The real stressor is this the people I have really relied on or no longer reliable. This means that I'm not me getting my clothes washed. I may have discuss this in this blog before I don't know but the agency of program or joint that I'm staying in sort of has a policy of not washing the residents clothes which i think is pretty bogus especially considering the price one pays the stay at this joint... Seriously over $4,000 a month. I know I know its not self pay but still it's because of you / me this we need meet but the company gets the money till what time to bust their ass a little bit more and wash the clothes when they need to be washed. I have been relying on the good works of the CNAs at disjoint to clandestinely wash my clothes. But, for one reason or another all these. folks are gone. In fact last week I thought I'd had my clothes washed and I'm quite smoothly only to find heartbreakingly this week as I went to dress is the garments I went to put on we're dirty they were not washed. I can only imagine or what I want to believe is that the wash saturda pile never washed and when my next Confederate came to work thought the pile was cleaning clothes hold of them and put them back in my drawers. I would hate to think they knowingly try to recycle the clothes and not thought that I would not see the soiled clothes. Then again there's there's nothing I can say since staff is not supposed to wash the clothes anyway. If I complain I get the CNA and problems / trouble and maybe even me since I push them into breaking the company rules. I am just thankful I am a short timer here and soon I'll be in to my next phase. I was bemoaning my plight when Tara the nurse walked up- - I thought I was a Deadman I thought the ruse was up but I was shocked when she agreed to have someone wash my clothes after day time staff left, taking me off guard. I will try to back away from the whole situation by asking what was the closest laundromat. Tara just calmly put my protest decide and assured me the project would be done. Just took a huge weight off my shoulders. I hate sneaking around doing stuff and then getting my clothes washed every week has been a major challenge. hopefully this won't be an issue much longer as I get ready to phase out.organizations that are going downI think it's very weird that I always get saddled with organizations that are going down the tube one way or the other. It's just strange I don't know how to categorize the feeling that I'm having as I sense the joint that I'm staying at systematically unraveling. I sensed something was wrong this morning as I lay in bed and watch the daylight begin to creep through the window. It was much later then the 6 o'clock that I was expecting. I was expecting Brian this morning. yesterday I was expecting Katie but Brian showed up. KD being out of the picture now for a while but almost a week I really expected Bryan. but Brian didn't show I guess this morning leaving just a few people to do the floor. Brian not showing up this quite disturbing the clothes that in the pile Brian always shows up Brian is dependable Brian doesn't make it to work then something is definitely wrong. The real stressor is this the people I have really relied on or no longer reliable. This means that I'm not me getting my clothes washed. I may have discuss this in this blog before I don't know but the agency of program or joint that I'm staying in sort of has a policy of not washing the residents clothes which i think is pretty bogus especially considering the price one pays the stay at this joint... Seriously over $4,000 a month. I know I know its not self pay but still it's because of you / me this we need meet but the company gets the money till what time to bust their ass a little bit more and wash the clothes when they need to be washed. I have been relying on the good works of the CNAs at disjoint to clandestinely wash my clothes. But, for one reason or another all these. folks are gone. In fact last week I thought I'd had my clothes washed and I'm quite smoothly only to find heartbreakingly this week as I went to dress is the garments I went to put on we're dirty they were not washed. I can only imagine or what I want to believe is that the wash saturda pile never washed and when my next Confederate came to work thought the pile was cleaning clothes hold of them and put them back in my drawers. I would hate to think they knowingly try to recycle the clothes and not thought that I would not see the soiled clothes. Then again there's there's nothing I can say since staff is not supposed to wash the clothes anyway. If I s just strange I don't know how to categorize the feeling that I'm having as I sense the joint that I'm staying at systematically unraveling. I sensed something was wrong this morning as I lay in bed and watch the daylight begin to creep through the window. It was much later then the 6 o'clock that I was expecting. I was expecting Brian this morning. yesterday I was expecting Katie but Brian showed up. KD being out of the picture now for a while but almost a week I really expected Bryan. but Brian didn't show I guess this morning leaving just a few people to do the floor. Brian not showing up this quite disturbing the clothes that in the pile Brian always shows up Brian is dependable Brian doesn't make it to work then something is definitely wrong. The real stressor is this the people I have really relied on or no longer reliable. This means that I'm not me getting my clothes washed. I may have discuss this in this blog before I don't know but the agency of program or joint that I'm staying in sort of has a policy of not washing the residents clothes which i think is pretty bogus especially considering the price one pays the stay at this joint... Seriously over $4,000 a month. I know I know its not self pay but still it's because of you / me this we need meet but the company gets the money till what time to bust their ass a little bit more and wash the clothes when they need to be washed. I have been relying on the good works of the CNAs at disjoint to clandestinely wash my clothes. But, for one reason or another all these. folks are gone. In fact last week I thought I'd had my clothes washed and I'm quite smoothly only to find heartbreakingly this week as I went to dress is the garments I went to put on we're dirty they were not washed. I can only imagine or what I want to believADu Dub

I think it's very weird that I always get saddled with organizations that are going down the tube one way or the other. It's just strange I don't know how to categorize the feeling that I'm having as I sense the joint that I'm staying at systematically unraveling.

I sensed something was wrong this morning as I lay in bed and watch the daylight begin to creep through the window. It was much later then the 6 o'clock that I was expecting. I was expecting Brian this morning. yesterday I was expecting Katie but Brian showed up. KD being out of the picture now for a while but almost a week I really expected Bryan. but Brian didn't show I guess this morning leaving just a few people to do the floor. Brian not showing up this quite disturbing  the clothes that in the pile Brian always shows up Brian is dependable Brian doesn't make it to work then something is definitely wrong.

The real stressor is this  the people I have really relied on or no longer reliable. This means that I'm not me getting my clothes washed. I may have discuss this in this blog before I don't know but the agency of program or joint that I'm staying in sort of has a policy of not washing the residents clothes which i think is pretty bogus especially considering the price one pays the stay at this joint... Seriously over $4,000 a month. I know I know its not self pay but still it's because of you / me this we need meet but the company gets the money till what time to bust their ass a little bit more and wash the clothes when they need to be washed. I have been relying on the good works of the CNAs at disjoint to  clandestinely wash my clothes. But, for one reason or another all these. folks are gone. In fact last week I thought I'd had my clothes washed and I'm quite smoothly only to find heartbreakingly this week as I went to dress is the garments I went to put on we're dirty they were not washed. I can only imagine or what I want to believe is that the wash saturda pile never washed and when my next Confederate came to work thought the pile was cleaning clothes hold of them and put them back in my drawers. I would hate to think they knowingly try to recycle the clothes and not thought that I would not see the soiled clothes. Then again there's there's nothing I can say since staff is not supposed to wash the clothes anyway. If I complain I get the CNA and problems / trouble and maybe even me since I push them into breaking the company rules. I am just thankful I am a short timer here and soon I'll be in to my next phase.

I was bemoaning my plight when Tara the nurse walked up- - I thought I was a Deadman I thought the ruse was up but I was shocked when she agreed to have someone wash my clothes after day time staff left, taking me off guard. I will try to back away from the whole situation by asking what was the closest laundromat. Tara just calmly put my protest decide and assured me the project would be done. Just took a huge weight off my shoulders. I hate sneaking around doing stuff and then getting my clothes washed every week has been a major challenge. hopefully this won't be an issue much longer as I get ready to phase out.


Monday, February 22, 2016

Phase Out Phase In

It's Monday the beginning of the last week I will be here at the s n f dollar I'm actually quite surprised that I am beginning to have some feelings perhaps bordering on sadness at having to leave this place which has acted as my home for the last 100 days or so. It is very easy to begin to think of this place as home. The place where I get my meals, my physical workouts and even some socialization. Sometimes I wonder if I am too complacent are you accepting of things that happened to me. I guess I just roll with the punches and see what happens for the most part feeling there's nothing else I can do. I do not know how healthy that is but overall this behavior has gotten me this far in my life.


I have made some good friends while here, I do not know how good they are , but they are friends. Friends made from the staff as well as other residents here at cascades. Folks that you look forward to having a meal with and feeling concerned when they are not present.  In all honestly I must confess that I have been somewhat reticent in developing relationships due to the fluidity of people here at the SNF. It seems most folks are here for just a few days or weeks at the most. Butof ten I have been drug into conversations (somewhat against my will) to find a totally interesting person. Someone whom I truly would like to know better in a different world, w world away  from the SNF.  I have collected emails, addresses and looked up phone numbers but have yet got no further then sending "first contact" emails. One fellow is a resident of Montana and the other is 90 year lad,who is living independently here in salt lake city, way up in the East sida. A pilot, skier and engineer-he was skiing a month and a half ago--I have seen the video. I don't know why I have not contacted him yet to see how he has transitioned back into his home and life. I think I may be afraid that he will have forgotten me.

I like to think that the professional staff for remember me after I leave but really I know better than that. I am just the meat, that thing that reason that piece of work to put meat on their tables to make sure the cars are paid for as are the condos in town houses. This is cool I don't have a problem with this I understand. Its not like I had a relationship with every phone call that I took when I was managing Access Utah Network , I remember the PTS I have at University Hospital last year and the year before and I doubt that I would say were friends with the exception of one or two. Overall I smile at them when I see them in the hall R in the physical therapy room at University Hospital. I must admit that one of the Fox my wound specialist is a member of a band that Dianne and I have gone to watch perform and we friended him on Facebook and I like the things were more than just a passing appointment.
Then there is Amanda my occupational therapist who I think we have made a special bond, I really think we have but that's as far as it will go and perhaps that's best what would you do with that many friends holy cow really?

I am moving on, I have just about completed this phase of my life, if that's all it is a phase. I'm anxious and almost excited to move to the next phase I'm a little spooked but that's okay and I would be stupid if I was not. and of course I will keep you all informed as I go.

Sunday, February 14, 2016

NothingTo Sweat About



Every couple of days or so or so either a pain doc Or pain nurse drops in to ask about my pain levels and when they ask me I'm never really in any pain to speak of not that I would consider pain to consult a physician or pain specialist about.  but truth be told I am begin to experience pain not that the pain is great enough because many great inconvenience but the pain is there.

The past couple of years I've experienced pain on my feet. I even got so much pain that I went to dermatologist at one time who diagnose plantars warts and just this last week I went to a podiatrist and got my feet worked over. The podiatrist was a nice guy, podiatrist was a nice guy, and other person but seemed to know what is talking about. He dug around a little bit trim some nails and answer some questions. You didn't really crimson nails and  He didn't open any great vistas of information but but I've actually felt better since the visit. Some of the issues I am having is because my left foot or ankle is fused from the trauma back in 66 my foot tends to roll over and then we'll see spasticity presses greatly on the side of the foot causes me great pain

I always thought it was interesting how other quadriplegics would get the sweats.. spinal cord cord injury  the body  longer sense pain the normal way, often plan the body is in pain the body registers the discomfort ni de spasticity, greater spasticity are you in sweats. I never really sweat however many of the people I knew with spinal cord injury did and I could never understand what they were going through until just lately. Really within the last year I have really begin to sense paying by sweating or just general discomfort by sweating. A couple of case in point might be the footage you I was just talking about as well as sitting in my chair improperly. My gel cushion has really caused me to sweat recently even things like sitting on my balls now causes me to sweat as well as feel feel discomfort.

 I'm confused on what to tell the pain management people as I stated earlier if the pain was great enough I suppose I would alert these folks ,but at this juncture I don't see the need  I mean basically will just show chemicals at me and I don't need that. I don't need any form of addiction more than already experiencing. So I'll continue to enjoy this new phenomenon of sweating to the pain I try to be alert to the point of if I am sweating because of pain then get off my butt and do something about it - - like that pun? I'm OK I'm not depressed just getting by one day at a time.Q

Saturday, February 06, 2016

Too Pooped To Poop

Sitting on the toilet waiting for my suppository to work 9:40 almost ten. I've been trying to get this project executed for the last 3 hours maybe 2 hours actually. There seems to be a great and mighty force working against me trying to get my suppository in and myself evacuated at a reasonable hour to get to sleep.

I have started this project in order to get back to pooping over the toilet that's supposed to poop in a bed which days been really trying to force on me since my stay at the hospital since the operation. I really hate who pooping in bed but I've got over that before. I've got my program setup now so that I do the program every other day. That gives me at least one day where I do not have to worry about mounting the toilet. So on the days that I do my program I've been taking great pains to make sure all the equipment that I need is readily available. And this this should be a relatively simple project. I I first try to find the left, the hydraulic lift, everybody calls it the Hoyer but it's not a  Hoyer lift it's just a hydraulic lift simple. Then I have to make sure there is a sling that will work for me. These two items invariably are misplaced when I need them. I have learned that on the night I do my program they will not be available when I need them so I need to get him in line first. If by regular staff does around they pretty much have things figured out sorta. They at least start looking for this items. But if its like some nights lately where there is been very few staff it becomes a scene from the Keystone Cops trying to get something accomplished are the three stooges. I try to remain calm and in some cases I even volunteer to assist in the search for the items in question. I understand the building I am in is pretty spooky specially if you're a teenage human having to go down to the basement all by yourself can you search of such a device. I am more than willing to accompany the person in the quest for the left are the slings. Now mind you this is all taking place while other residents are needed assistance, so we search we placed on hold until some of the other faults could get their needs met too. But this all takes time and soon the project start at 7:30 becomes 8:30 and 8/30 and nine. I count myself lucky if I could actually get on the the toilet by 9 guess it could be another 45 minutes before I get done with the program. Hopefully , I can get the staff trained well enough they well know where the equipment is and how to use it. but not soon enough for me in the short time that I will be here at the facility.

The suppository finally kicks in and I finally do my job seems like it took forever. Takes a while before staff gets back they can get me off the toilet and in the bed. About a quarter to 11 and finally all done and I can turn over and begin reading for the night. I'm just thankful I don't have to lay in poop forgot to be hours.

Friday, February 05, 2016

Time On My Hands

It's 4 o'clock in the afternoon this Friday the fifth day of February. I'm sitting in my room at cascades On the river rehab facility, aka long term care socifacility masquerading as a rehab facility. I've been in the room most of the afternoon a large part of this morning. It's Friday and that means I am out of minutes basically. You see everyone gets so many minutes a week therapy and when you run out you out you're done and I'm always done on Fridays before noon. Now this is a bad thing for say this lets me do a lot of stuff I want to if I have a way to do it. I spend a lot of the time today for instance talking to Dianne , trying to post to my journal, and doing cryptoquotes - - not don't tell me I have nothing to do. Of course tomorrow will be even more of the same since I have no therapies now until Monday. It was around me to goof off so I had something to goof off with. It sounds like on Sunday Dianne and I are going to the movies to watch some kid animation about a dinosaur which is okay with me. Tomorrow I plan to watch a movie slash DVD my OT brought it in for me last week that I never got around to.  if the weather was a little bit warmer I would actually try to exit the facility and wander around the neighborhood for a while maybe even go to the window which really isn't too far away pick up some crackers I've been thinking about.

I contacted Alpine Medical yesterday or the day before and ask them how or what was being done on my power chair. I wasn't really sure what the issues were and had some conflicting information. The indicated that the problem with the chair has been ordered and will be installed as soon as he gets in to Salt Lake. He went out of his way to him let me know that the part would be covered under warranty as well as the labor. It wasn't talking about some other issues with the wheels and I thought they meant the drive wheels the big fat wheels that's it right underneath me but it really wasn't that was the casters use a little wheels in front and back of the drive wheels their little packed up but they surely don't need to be replaced at this point in the game not less the year after I got that piece of equipment. I'm really quite surprised at how well my butt is taking the issue of not being able to tip or tilt in the power chair. I thought my butt would really be chewed up by this point then true sit in this chair without the tip ability tilt ability I'm doing okay in fact a lot of time I spend in my manual chair then this is quite good cuz I'm building up endurance and I think strength. I am trying to be up in the chair a little bit every day three to four hours if not longer. I'm a little worried about tomorrow , Sunday because if I do get in my chair there are not be anybody around to get me out at least from the therapies. I suppose I could get somebody on the floor because if I do get in my chair there will not be anybody around to get me out at. I suppose I could get somebody on the floor guy couple of people to get me out of my manual chair and back into my power chair we will have to see.

It's still the first week in February which means I'm still working on letters I pretty much have Michelle and the girls done I still have to do Bridget group and whoever else I want to write to. Actually I want to the Fox and showed up to my party at the Shanghai . It's been an eventful week I'm tired maybe I'll go to bed early... Or maybe I won't.

Monday, February 01, 2016

Can You Say LEMON??!!

I feel like action the hot headed little guy from West Side Story, from a stanza from cool. Cool cool. - be cool stay cool a cool boy - - - Saturday I had just gotten up and gone down to breakfast at the cafeteria or dining room, when I got into the dining room I tell to my chair back in order to adjust my clothes - - this is something I always have to do in order to feel like I look halfway decent and put together. As I was tilting I've heard a large crack are loud crack but didn't pay much mind to it I was pretty much in the laid back position at that point. I had adjusted my clothes and went to tilt back to the upright position and nothing happened. I knew at that point something significant happen to the power chair. I was stuck in the laid out position for the tilt back position at full tilt. I was lucky that Brian just happened to come walking by that's at that point in time and asked if I knew the hand which I responded to the affirmative. I told him I was stuck in the down position and I needed help and of course in his youthfulness grab the back of my chair and lifted up and of course and the seat went immediately to the down position so quickly I was glad that I didn't fall out luckily I was bolted in are belted in and I just set up quite quickly. From that point forward we knew that the tilt mechanism is broken in my chair. Brian did pick some images with his camera and send them over to mine and one of the images you can see where that looks like the housing is broken off the tilt mechanism piston. Mind you these are all my words I don't know what the professionals will call it but if they won't call it fixed soon enough for my needs. So I suffer through the weekend not being able to tilt in place the lean back feature of the back still works so I am able to lay the chair back at least take some of the weight off my butt and like I said it got me through the weekend.

Today I dropped the whole thing in  Amanda apostrophe s lap who immediately got to work. And of course Alpine sheep to jump right on it. We are making arrangements to send the chair over with in the company van tomorrow where they will drop the chair off and Alpine will do an assessment for what is needed inside the chair back. Then I'm sure they'll have to ordering parts Chris who knows how long that will take? But I think I can get by with my manual chair and then lean back in the power chair when I have to. Not the way I want to live but it's the way I have to go right now. I am just hoping and praying that any of the work will be covered under warranty since it's still less than a year old as I understand it. And hopefully that won't cost me anything for the repair. I am now beginning to wonder if I have a lemon of a chair so many things have gone wrong with that since I've owned the piece of junk. I hate to talk bad about my chair that's just not the chair that I needed and I felt it was forced down my throat. I was just part of the time since by the chair and falling apart and I needed to do something desperate. I took the chair.