Monday, January 31, 2005
To Fox or not to Fox
Fire Fox Boys
Welcome to the Blog scene James and Mark—pretty cool. I look forward to seeing and reading your efforts. Shelly has a couple entries into hear poetry blog. I am sorry James I lost your blog address so email me your blog address. We almost got networked last night. Mark was over for four hours yesterday and we nearly got the computers to recognize one another. I am sure it’s just a twickle here or there and we’ll be up and running…then to the next step, which will be “nuking” the hard drive. I have so many hijacking viruses(?) pathetic and uncomfortable; NO ONE believes you when you tell them the icon on your desktop to an adult website just showed up and won’t go away no matter what you do. So it’s time to sanitize the drive and start over. I AM ready kiss off Internet Explorer an Netscape just down load Firefox and be done with it. I need to get back control over my system.
Sunday, January 30, 2005
Holding off Chaos
It takes so much energy to hold off chaos. I know I have been been setting back the chaos all day. We started at 9:30 this morning by doing tyh4 dishes and ninety minutes after that we started on the bedroom.. The bedroom has been slipping in to chaos for the past six months. It is just so hard as one season slips into the next. One set of clothes is brought in from the shed thinking the other set will go out and the past season remains but is not used. Last season's get buried with washes of clothes never getting hung because there is not room because the former season's continue to take up space, throw in a couple of holidays—especially Christmas with gift clothes which add to th cycle of chaos, a couple of trips to the Shopko, Sears, or Target and soon you have chaos so grand you feel you, the human organism is getting crowed out by the garments. But today something moved us. Today, went o the bedroom following the dishes and we took on the chaos and brought order to the room. The reigning in has taken four hours maybe more but we have just about brought our order to the chaos of the clothes. Maybe next weekend chaos management be shorter.
Saturday, January 29, 2005
“Shields Up” Family Reunion Ahead “Shields Up” Family Reunion Ahead“Shields Up” Family Reunion Ahead
I was so looking forward to Spring.
Friday, January 28, 2005
Friday-Payday
Last Light for Friday. Finally. The inversion has moved out—the only thing good about the inversion after the first of the year is: when the sun finally does return you notice the hours of light are getting longer…did I say that right? you know, it’s dark when I leave for work, inversion or no inversion. When we have an inversion for a couple of weeks and you leave the house roughly, the same time each day, it’s just dark. But, when finally, the inversion does move on and I crash out my front door in my power chair I see the first streaks of dawn: DAYLIGHT! Now, each day I leave it’s lighter and lighter and then it’s Spring.
So not only is it a Friday but it is also a payday and there are hints of Spring in the air. It does not get much better then this for the working Gimp. I wish all of you out there happy Friday and Happy Payday. It’s been almost a week now since Cinnamon passed. Dianne and I are still sort of mourning but moving on. We are at that weird stage where you still expect to see her everytime you turn the corner, or when you come home at night or you turn the corner to the bed room and you swear you saw the tip of her tail just slip out of the corner of you vision. I went through this when Sheelan died. I swear I saw Sheelan everywhere. Sheelan was this cute little crip chick who worked at the same independent living center I did. She died of ARDS a while ago now. She used a big old power chair for mobility she was pretty cool. So, I know these weird events are just part of mourning process. Life moves on.
Thursday, January 27, 2005
Thursday Thursday
I spent some great time with Marv F. from Logan. I always forget how great a guy he is. I always come away from a meeting with Marv uplifted if not inspired. He is on the verge of having some time to focus on doing some creative writing and I would really like Marv to consider writing some fiction. I would be very intrigued with what he might come up with.
With the rain, perhaps this inversion is ready to move on—still cloudy though and the sleet is cold and wet but I know Spring is coming.
Wednesday, January 26, 2005
Oh Nooooooo!
Ohnooooooo!
I was really hoping the sun would breakthrough today, but not yet…but I know it’s coming this inversion cannot, will not last for ever! One of the guys I ride the train with is under going neuro-surgery this morning for brain cancer. This is the worst, I would think; but, I have been impressed how well this guy is taking everything. I hope when my time comes I handle things as good as this guy. I just met him, riding the train, I mean that’s what happens riding the train. You see someone over, and over, every day and soon you’re talking, and then becoming and then caring and soon you have a friend, even if you did not start out with this in mind it just happens. This guy is named Don, I mean I know him a little, like I said he is on my train, but he is a nice enough guy. I have to get him a book, a specific book, I have to go out and find him the first book in the Turtledove series WORLD WAR . I told Don about the series once and he seemed intrigued…I just have to find out the results of his surgery to see if he will need “talking books “ or will be able to make do with just the regular books. Neurosurgery can mess a person up so bad.
No word back from the MDs office yet. The doctor’s office has my work number but have left two messages on the machine at home to call them for the results. So, I just called and now Susan the main nurse is out on family emergency and sounds like other staff are gone as well. So I don’t know if I’ll get the results today. I am probably dieing. I do have a weird sensation in my chest…OH Noooooooooooo!
Tuesday, January 25, 2005
Thanks Gabe!
Gabe and Ani on a Snow Day Helping me dig out
Good old Gabe saved our butts again. The last couple of days there has been an ominous sitting of water in the hallway behind the fridge. The fridge is a side-by-side fridge and freeze, with water dispenser and auto icemaker. Something is leaking behind the fridge and is impossible to get at without moving the whole unit out. We have been placing towels down and it has been soaking through pretty fast—mind you the water is seeping out onto the hard wood flooring in the hall way so this has to stop. So the only option I to get under the house and turn the water off at the source. So we called on Gabe—he came over with Ani and he had the water turned off in ten minutes. Thanks Gabe. What really irks me is that because I use a wheelchair for mobility and have no hands to speak of, I am a quad from a motorcycle wreck years ago. If I was able bodied I could do all this stuff but I cannot. Dianne does what she can and when she can but really has to do a lot of stuff that I would do in other realities. It’s the way of livening “independent” with disability. You grab what you can who you can- and it’s usually neighbors or family. It’s how you have to get by if you’re a guy in a chair.
Monday, January 24, 2005
Monday AM traumas
The inversion holds but a low pressure is trying to push itself into the area, perhaps by midweek or the weekend.I just have to be patient this too hall pass. I am zooming! Today was really the first day to test the endurance of the new batteries, but they worked like champs. I left the van in the drive way and rode the chair up to the trax station. Monday mornings are traumatic enough; add to that trauma a death in the family over the weekend i.e. Cinnamon and I was up late not matter what, and that translates to getting out the door. I have to admit I did OK, the train operator saw me cross the tracks and actually held up the train till I could get to the ramp up and in by doing that I was put back on schedule.
Sunday, January 23, 2005
Inversion
I forget how drab Salt Lake valley becomes once the inversion sets in. Again no sun, dark skies and cool temps. What's really weird is that a person can drive thirty miles in any direction and you drive right out into a bright clear and warmer day. We will not do that not today though. Cinnamon, our dog of 13 years broke her front leg last night jumping on to the bed. Cin had been having a rough go of it past couple of months. Her bone have calcified pretty bad and she was limping every where she went., She seemed happy though, wagged her tail, not s much as usual, but all in all she seemed glad to be round. After we quieted her down though you could tell the front leg was indeed broke. This morning she could not even do her ADLs. We had to do something. We elected put her down. ?A hard decision but the only one for Cinnamon. I was surprised at how efficient and straightforward the event went. Emotional but OK. We went to our pet smart who did the deed for $109.00. What was really interesting was the way the dealt with us...just like a mortuary. Hushed voices, staff was very supportive and they had a special exit so we would not have to go back out in front all the people at the store with all their live and healthy animals. I thought was hokey at first but after going through the event I appreciated the exit. The DMV was great, took time to explain how and what was happening to Cinnamon as she was going through the injections and dying. The process was swift and painless for Cin. Gabe went with us and we appreciated that. Gabe was great. Ani has spent the night and was with us this morning when we decided to let Cinnamon go. Bridget stayed at the house with Ani while we drove to Pet Smart. Ani took the event very well for a 5 year old. So it's done. Cinnamon is in a happier place, all the cars and cats she can case, roast beef every meal and dog treats given out by little boys and girls who never has a friend as good as Cinnamon in their lives.
Saturday, January 22, 2005
Saturday Night
Saturday night, and I wanted to get a couple of thoughts down before I finished this day. I made it to Jamies OK. He drew blood for PSA and a urine sample but he did not seem too concerned. I even got the script for the new power wheelchair. I must now convince the insurance folks of my need. OH! I also had enough time to stop at the battery place and get two new batteries. The batteries are great I had gobs of power all day. I felt invincible as I shopped and ran errands.
<>Friday, January 21, 2005
Dipping Back Into the Medical Model
Friday! I have worked a couple of hours over this week so I can leave the office a couple of hours early so I can go see Jamie, my MD, to get the hallowed signature and support letter needed to see if I can get my insurances to cover the cost of a NEW power wheelchair. This is always a trip, to see if Jamie will do it or not. I am sure he will! He always has just scripted out what ever I thought I needed to live as independently as possible. My Doc is Jamie Longee and he is the best, not intimidating, lets the consumer call the shots, a GP, but has an interest in Spinal cord Injury(SCI). I am beginning to have medical issues secondary to the aging process which I feel might be specific to SCI and quite frankly scare the snot of bringing the issues up even to Jamie. I just do not want to have to go back into the medical environment, no poking, no sticking, no cutting no rehab! BUT, I am experiencing discomfort more and more from sitting to urination. I realize that as I age Ill have to be seen for these issues and that is that. I can always say "no" to anything suggested and see where I go from there.
Thursday, January 20, 2005
Please Pass the Piroshki
The meeting with the Sister City program was interesting but late and long. The meeting place had been changed and I did not get the email. I actually got to the original designated place and even downloaded before finding out the meeting place had changed. I finally got to the new place Europa just before the meeting time. I am just amazed at how many Russian deli s and restaurants are popping up in the Salt Lake City area. I got in and made the general introductions right on time. There was about twenty people there throughout the evening most being Russian. We started right in on dinner. I was intrigued at how bland this food was. When I was at university Professor Skirmatz made the class a number of meals and I found her food quite tasty compared with last nights fare. I shall keep an open mind however. What was fun was using my rusty Russian language skills. I am still quite a novice but the ability to even try with real live speakers is very reinforcing. I am at least looking at my grammar again. Who knows where this will wind up.
There look to be three Utah Cities in the Russian sister-City program. Salt Lake, West Jordan and Tooele; each having there own cities. The ROTARY is a big player with this project too. I am sure there will be more to come. The meeting went on for some time--I did not even get out till 9:30 or so...A long day for the Old Guy.
Wednesday, January 19, 2005
Inversions and Russian-My Long Day
I feel guilty because I drove my van in today. I usually use public transit (UTA). So, today I have done my part to add to the City’s particulate levels. But I have a meeting this evening with the delegation from Salt Lake’s Russian sister city. This will start at 7:00 and go for who knows how long. This is my first meeting with the folks and I’ll advise how the meeting goes. I am the crip representtive. I suppose I represent the Salt Lake City Crips reaching across the world to our sister Russian City Crips in Izhevsk. This should be an interesting evening. I even drug out my old Russian Grammar…
Tuesday, January 18, 2005
Just Get The Wet Ones!
I must have been mulling round the issue in my unconscious and realized that I hardly ever travel by air and if I do I never take my Jazzy. I have made the appointment to see Jamie( my doc) and if all goes well I will be ordering a new Jazzy very shortly , so I would not be using the "wet" batteries very long anyway. The major downside is if I ever turned my Jazzy over-- and it's been down once or twice--I could get acid burns but I really doubt this is a possibility...FLASH--so get the $50.00 cores and get the camera !!! I am going to make the call later this morning.
It's a Tuesday/Monday( when a week starts after a holiday--you get the first day of the week feeling on the second day of the week-- just a bit of temporal confusion
Monday, January 17, 2005
It’s Extortion!!
I have been on the phone all morning. I thought since I had the day Off I should do something productive with my time. Get then needed batteries for my power chair. I called and called and found the batteries ranged anywhere $170.00 to 350.00 EACH!! Unbelievable! I am even considering lying in wait at the local Independent Living Center and pulling the plug on some unspecting crip as the exit the place and then remove his or her batteries—I mean these guys got them on Medicaid anyway—hey get replaced but then I would be as bad as the durable medical equipment vendors. So, alas, I am going to try to go through the system and see what I can do.
<>So from now till I can get another chair or new batteries I am going to drive me van to the Trax stop and from there trax into work and charge the battery all day and return. I do not know what else to do. If anyone has access to a set of Group 24 deep cycle, gel cell batteries let me know.
Sunday, January 16, 2005
Sunday Morning Back Pains
It's a holiday weekend for me so I am still trying to have some fun. I am cooking today. I am making lasagna . Dianne has run to the store to get a couple of ingreedents I did not have here at the house so I am catching up on the blog till her returrn. A quiet , cloudy day in Murray--really too cold to go outside. I am starting to read a novel MOONFALL and looks like it will be a good read.
Dianne is back now, we have mixed the rest of the lasagna and it is cooking it's last 10 minutes. Bridget , the daughter, came over and she and Dianne in the sauna. Hopefully everything will be done soon and we can eat. I am hungery.
I love sunday nights on a holiday weekend I know I have another day to enjoy and I intend to. Every one have great MLK day!!!
Saturday, January 15, 2005
It Never Fails!
Well, it's saturday night and Dianne is at her Doc ppointment and I need to put some hamburgers together--then I might burn a couple of CD's if I have the time or energy.
Friday, January 14, 2005
Back at the office
I just could not get the hours to come out right. So, I elected to come in the a.m. for couple of hours. That way I can leave with a clear conscience and even give the State an hour or so. I wish I were not so weird that way. I did take the afternoon yesterday off. I stopped at Magic Rest and they load tested my batteries and there seems to be nothing wrong with the chair or the batteries. I guess the batteries are just old and not holding a charge, plus the fact I drive the hell out of the chair, it's freezing and I weigh a ton--so maybe I just need to stop boobing bite the bullet and invest in two new batteries. I can afford it $230.00. This is the price if I buy the batteries from a battery house and have a brother or neighbor install the batteries...otherwise it will cost me $300.00 or more (see yesterdays or maybe fore posting regarding the screwing of America’s disabled. So I am sitting here at my desk with my power wheelchair plugged in so I have enough juice o make the train for my 11:00 meeting. I noticed I had a flat tire on my van last night when a slow leak. I had Dianne fill up the tire and I drove the van into work and dropped it off at the Firestone and should be ready when I am done at DDS. I am off after the meeting about 1:30 so maybe I'll get the batteries today and have them installed over the holiday weekend.
Thursday, January 13, 2005
69 Hours and Counting
I have to go down to Magic Rest today after work. Remember the issue of losing all the power in my chair last week? I am going in to have my batteries load-tested. I realized these are new batteries, I Just bought them last September they shouldn’t be downloading this fast. My controller is clicking madly too and I am hoping these two items are not related, either way I know the experience is going to cost me. I am praying the issue is with the batteries and they still will be warranted (?) . I also found out yesterday when I called to set up my appointment, with Magic Rest, that the batteries were only 35 amp rather then the 75 amps I thought the batteries were. So I wonder how much of a jerk I need to be to make sure I get my needs met. You know the hard part about being a crip I not being able to do the physical thing I used to be able to do but getting screwed every time I turned around which forces me to be in continual asshole mode—I just hate that.
Wednesday, January 12, 2005
Something very Scifi
The weirdest thing happened last night as I was waiting for the train home. I usually catch the train out of town at the Galivan Center in Downtown Salt Lake City. Well, I had just powered up to the Station and my train just pulled out. I have to wait another 20 minutes before the next train comes. There is a great bookstore right across from the Trax stop called Sam Weller’s Zion Book Store. Sam Weller’s put in a coffee bar over Christmas and it looks out onto the Trax stop. The weather had tuned cold by the afternoon (still no damn snow!) I can sit there in the warm, coffee aroma(ed) bookstore and keep track of the time. Here is the weird part. I noticed the electronic announcement board (where the digital clock is located and train arrivals are announced) went dark…these never go dark. I thought this was pretty weird so left the bookstore and went back onto the Trax stop so as not to miss my train. I noticed by the time I got to the top of my ramp that the displays were back on. When I looked closer I was blown away because they read “1:35 am January 1, 2095’. I looked round at the other passengers to see if they thought was strange but no one seemed to notice! About two minutes pass then all of the sudden the display changed to read “5:33 pm --January 11, 2005”. The universe was back to normal. I am trying to get hold of the Authority (Utah Transit Authority) to see if they can explain this to me but as yet to no avail. I am sure there is a really great explanation for this glitch I just thought it odd.
Tuesday, January 11, 2005
I have a choice!
Monday, January 10, 2005
Let Gramps Powerchair go-
One of the things I do for a living is manage an Information and Referral line for people with disabilities. We have a number of pages with this website and perhaps the most valuable, in my estimation, is the Salesbank: a place where people, who have used equipment, can list the product for sale, trade or donation. This seems like a great website and program until one realizes that the people are left after the person with a disability dies try to get as much money as possible from the equipment left behind. What happen they list a power wheelchair for (usually) thousands of dollars and no one can afford the product. This issue is complicated by the fact that durable medical vendors-folks who sell this equipment refuse the take anything back once the product has been sold. I know of numerous accounts when the product was ordered for someone who was on life support and died before the item got to them leaving the family with new equipment, which must be sold as used. So the family cuts the price in half so the family is now offering the equipment for 2,000–3,000 dollars still keeping the item way out of reach of the common person or family let alone one which is experiencing disability. I envision the item will sit in the garage of the basement for a couple of years and eventually be sent the way of the local salvation army pick-up or worse, the dump.
Today I have had two calls for power wheelchairs from people with disabilities with little or no funding needing to get some form of mobility preferably sooner then later. Common people most of this equipment was purchased with second party payer money—their insurance or some government program bought the equipment. Let it go- gramps would have wanted it that way!!
Sunday, January 09, 2005
Waiting for the Storm
The promised storm never arrived! I was hoping to wake this morning to inches of snow but alas no snow, just warm temperatures. ` Actually that's OK. Once I accept there will not be the snow for me and my` wheelchair to contend with I am happy. The clouds are hanging low on the great
Shelly called and we had a great conversation--how can one ever be bored with quantum mechanics? We set up a blog for her but she does not feel committed to it yet...I think she will be though--poems and pondering--this is my Shelly.
It's not yet three in the afternoon so I feel I am still in the weekend---three PM on Sunday seems to be the hour of change for me. I start at that time thinking seriously of Monday and making what I call "Monday noises", getting the back pack filled with what I think I am going to need the coming week, finding my shoes, scarf and gloves, books, wallet and transit pass and putting everything by the front door. I hate Monday morning chaos.
Saturday, January 08, 2005
I fall there for I am.
It’s another in between day, warm ands windy. More snow is forecast for tonight and tomorrow so I figured I had better get my errand done while I could get round Ok. I had a number of things which would have necessited me getting in and out of my power wheelchair. I figured if I just drove to the train station and jump the train into the city this would be the least amount transfers. So I filled the van up and drove to the station and trained into downtown
First time this year, each year I note I fall a few more times then I did the year before.
Four times last year, no broken bones…It’s just the second week in January.
Friday, January 07, 2005
Friday in Between Day
I was a bit vexed on getting into work--I am usually the first in the office --and I had a call waiting and sure enough it was Cecilia and she has sick kids and is not coming in today. This is not a prob except I was going to take off the afternoon for hours I put in overtime on Monday night before Advisory Board. Oh well I just have to pace myself. It should be quiet in the back here today.
You might notice different sized fonts today. I am still getting into this blog thing and I am trying to find myself and how i want to write but I am finding the experience so far helpful at least orienting me to writing something which might be read each day.
Currently reading: Picoverse, Robert Metzger...intertaining read dabbling in just enough hard science to keep me interested. I shall have to explore more Metzger