Saturday, April 12, 2025

Next step?

 I don't know what's happening to me but I'm getting more and more concerned each day that I struggle getting into and out of my bed. And if I struggle I mean not being able to make a clean transfer like I was doing last week. Last week though I had my regular chair it wasn't malfunctioning to the point where I couldn't use it but I was able to get into and out of bed without issue now however I'm just getting a little spooked this morning I almost didn't make it to my chair it took me almost a half an hour to finagle away to get my body into my chair after I failed on my transfer and was nearly sliding out of the bed between my chair and the bed I really had to be creative with my chair to finally get me to a point or I could finish a transfer and not fall I'll be stuck in the middle of the transfer between my chair in my bed. I don't know if you remember about earlier this week I had somehow managed to disengage the clutch on the motor on my left side and was stuck in my chair until I could get my son over here to help me and that was the middle of the night that's like 2:00 a.m. when he left. This morning I was actually trying to figure out how to get to my cell phone so I could make your call to someone to see if they could come and help but luckily I put all my thoughts together in my focus and was able to make the transfer eventually with my power chair my power bed working in unison to give me the best option to finish the transfer and it was kind of spooky I thought sure I was going to have to wait a long time before somebody knew figured I was not around as usual. Saturday morning I'm on my own. As I am on Sunday mornings and Tuesdays and Thursdays. Sundays aren't so bad because I usually meet my son for breakfast early and if I don't show up he's going to come over and look for me but the other three days that's a bit of a challenge. I think I just need to become more and more comfortable making these transfers and not be intimidated by what might happen and stay online of what will happen which will be I'm going to make a regular safe transfer and not I'll be able to contact somebody who will that's if I can get to a cell phone or a tablet or whatever. I know I feel I'm really focused on this right now but seriously I've never had this many close calls. The other scary option is that what would I do? If I were to get on Medicaid- - if that were even possible who knows right now with this current political cancer it seems to be going on– I would have to spend down all of my money as well as my bank accounts and cash in reserve or whatever to get the service that I would need. I would hate to have to deal with the concept of having a person here to help me everyday every way. But from what I hear from my caregivers a lot of them do that I mean they spend six to eight hours with the same person all day long meeting there every needs. That's really strange. Still I just need someone to get me up if I fall or get stuck. I actually talk to somebody who lives here at the building would be willing to have me call her if I were to get to a situation like that she might be able to help but maybe even find somebody who could help. I just don't know all I know is something's got to change or maybe if I could just hold on tell my regular chair gets back, working I might be able to go back to the old ways. But something in the back of my head is niggling me too face the music that I need to start thinking about the next step…..

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