Monday Madness

 Another early early wake up and really didn't get back to sleep. I think I was just so freaked out over finding blood on my fingers after touching my bottom last night that I fretted over the issue all night long. I was really hoping that Melissa and her magic would have an impact on how my day was going to go but sadly she's only human. However, I did order in the tape that we use on my sores and butt protection and I think that's helped a little bit. My goal now is to get this wound or wounds under control. I want to see primarily if I can do this without having to go to the wound specialist or have a wound specialist come in. I don't know I just freak out at the thought of having to stay in bed all the time and tell the wound heals. Maybe I would just have to stay in bed most of the time being able to get up and go and do things like my assist meetings and stuff. Mark Johnson who is a big gun in the disability movement has got a major wound on his ankle or leg but it sounds pretty serious and it sounds like he's been pretty studious at trying to get it repaired which I assume means that he's in bed probably 23 hours of the day for how long I don't know but I knew know that these healing projects take quite a while. I am also really hoping that my power chair will get back shortly hopefully sometime this week and I'll be able to get more support for places on my body that seem to be getting pressured in the possible formation of sores. Fortunately I called project assist this afternoon and thank goodness there's no meeting tomorrow. It's supposed to be raining pretty hard and I don't want to put any undue stress on my rear end that I don't have to. Hopefully this will be a thing of the past when I get my regular chair back and up and running again. So right now my day is pretty much sitting in my chair laying back to get the weight off my rear end and watching the flat screen. I suppose there are worse ways of wasting days but everybody would recognize the need of having the weight off my butt as much as possible. It's like being in bed but not quite the same. At least I have the freedom to roll around and navigate my apartment and sometimes that's pretty darn good. 

I was kind of afraid of getting back on the arm back today so that's Monday. I wasn't sure how directly the weight would be pushed down on my rear end on the arm bike especially if I was going to pump for an hour. But I rearranged my shorts which took off some of the stress for my butt and I was able to go ahead and pump for 60 minutes. I'm still quite surprised and hopefully haven't done any damage to speak of to my butt. Maybe tomorrow I can lay around some more and take more pressure off my butt and maybe that will assist in the helium process. What a way to start the week

First day of weather logical spring

I had the weirdest dream this morning just before getting up I think it started around 2:00 a.m. and I think most propagated by the feeling that I wanted to make sure I was up and so I could get to the restaurant on time for breakfast. I was able to get back to sleep off and on for the next couple hours until I got up at 6:00 a.m.. but I had the most difficult time remembering what day it was and that this was the day one of my caretakers got here and helped me do my poop. It was just so weird. Finally at the right time I got up and pretty much did a fairly decent job of getting ready except for I lost my shoe on my right foot and I couldn't get it on in time to get to the restaurant to meet the kids on time. I just set the shoe on my foot and nobody gave me any problems or hassles about it and my son went ahead and wiggled my shoe back onto my foot and I was pretty much set to go for the rest of the day. I still must admit that I continue to worry myself about how difficult it is to get ready get dressed and do the things that used to be relatively simple like putting my shoes on now I'm elected to go the whole day without a shoe on the one foot.

Following breakfast my granddaughter and her boyfriend/significant mother came to the apartment clean things up a little bit I was so pleased to have them here. Jackson does a great job cleaning sweeping and just getting things really put together nicely. Remember having somewhat bummed out about my power chairs left side where the armrest doesn't stay up anymore and it just sort of wears me out. Remember I couldn't even with my brother's help get the arm functional at least so it holds itself up and lets me use it to pull myself up to a city position better than not having anything. Will Jackson and Jasmine worked on this arm for about an hour today after they came to my apartment after breakfast. I feel that the peace was no longer functional and I just have to deal with it but after the two of them work together on this piece they got it to the point where was fixed in the right place and it's just been a godsend. I can tell already how nice it's going to be to have that functional in my day-to-day life. I am even thinking that the arm on this chair working the way it's supposed to now well help me till I can get until I get everything taken care of and maybe that won't be an issue that's my chair being repaired sometime this week. After the kids left cleaning my apartment I pretty much stayed in for the rest of the day. I had thought about going somewhere maybe but again I just not too secure with the batteries as weak cuz I seem to be. I probably will stick around the apartments this week at least until I get my chair back unless it's Tuesday and I have to go into the assist meeting.