I struggled all day yesterday, and in
fact I have been struggling all week and I really don't know quite
what to do except to go through whenever I have to go through. Day
before yesterday was when my issues of uncontrolled spasticity begin
to-be significantly relevant. For the past couple weeks maybe months
the pad on my left arm rest of my power chair has begin to
disintegrate. Now I realize I am the big reason for the
disintegration of is equipment piece. I rely on this piece heavily
pull myself up to a sitting position after slouching in my chair or
when spasticity slides me out of my chair. Typically, I can hook the
back handle my chair and then pulling on my arm rest again set myself
up to push myself back. I think in fairness to me last week I,
under my own initiative, made arrangements and made appointment at
Alpine Medical. Of course I was told they did not have the armrest
and stock and then proceeded to do an inventory of what my chair seem
to need. Again granted my chair is in pretty rough shape I should be
taking better care of it but still I wasn't in the mood to be up sold
on equipment I may or may not need just to meet my present need of
the armrest. Anyway no armrest and was back out in public trying to
maintain myself as independent as possible with damaged chair.
I finally have a major spasm while I
was holding on to the arm rest and the spasm was so fierce I pulled
the armrest from the arm of the chair, shattering the plastic base
that held it to the bar on the armrest. They were jags a sharp
plastic explosive this time. I was not an issue to me but sure
freaked out physical therapy staff when they saw what happened.
Actually it was K I K I the OT, who jumped on the occasion and
wrapped up my jagged armrest with great redtape I did appreciate
that. Later that same afternoon my right leg had spasmed out and I
was struggling to pull it back onto the footplate and one of the new
PT's actually stopped and asked if he could assist and I said yes.
Now the best assist is to have the person I'm physically place 1 foot
back of the foot plate. Now to me this is no big deal but I have
come to realize many people on the outside don't like touching other
people – – people are so weird. But anyway Mark the new PT
assisted me in repositioning my foot and we made a funny little bond.
So yesterday I called Alpine medical to
see if any movement had happened on my order. I didn't care about
anything except the armrest of course, Which I was told was not in
stock. Well, of course nothing had been ordered there always waiting
for the insurance. I just want my equipment fixed and to get off my
life. Well I was surprised when talking to the tech, who was not the
person I spoke with earlier, that the piece I wanted was in stock and
I could come down and he would install it . So that is exactly what I
did and that is exactly what he did and he did not even charge me
installation time which is totally different than any of my previous
experiences with Alpine medical.
The equipment repair has not stopped my
spasms but has allowed me to deal with the spasms a great deal
better. I feel part of the problem is the angle are playing of my
foot plate which I have damaged by digging the foot pedals into the
crown of the street which sometimes do if I forget to tilt my chair
back a little. This may help If s this repair happens at an
affordable price.
I hope Something happens because quite
frankly I'm exhausted and him the day pulling l myself back into my
chair something got give. I'm getting tired just thinking of my day
ahead.
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