It's 61° outside and I'm sitting
inside the house too tired to get dressed and go out do something
really fun and memorable for this holiday weekend. Once again I do
not know what's happening to me but thrashing and crashing all
through the night trying to chase down any moments of sleep I can get
my hands on. Really I was hoping I had all this under control when I
went into the position last week and got some medication to knock out
what looks to be a bladder infection. I had a major infection couple
weeks ago or maybe months ago maybe just a month ago bottom line the
UTIs are becoming way too frequent. I'm going to have to see if I can
get the.to develop some sort of medicinal prophylactic that will
focus contact these reoccurring UTIs. And I don't even know if that
were to be done if they would help me at all with my sleep. I don't
know if they would help with the sleep. I began to think my
spasticity is getting worse to the point it's keeping me up most of
the night. I thrash and crash all my long. I'm really amazed that
Dianne puts up with me because I really am having an impact on her
sleep time. I really have to be honest too, I'm getting kind of
scared with the spasms. I have one spasm that's pretty intermittent
but when it comes to killer. Thanks it pulls me up to a ball told me
there I can't breathe hardly very small puffs of breath I can get it
lasts anywhere from I think 30 seconds to a minute and eventually
loosens up and lets me get back to trying to sleep but this
terrifying are becoming more and more terrifying. So I lay in bed and
feel the spasms come on and I'm just scared that the next second of
ball up and not be able to unwind. I thought perhaps if I increased
by baclofen this would take care of the problem but it does not seem
to. It did at first I sensed that that was short-lived. I'm just
afraid if I keep bringing this up to my dock to order me in for a
sleep study or something and I don't want to do that but I don't want
to live in fear either so just to have to see what to do.
Thanksgiving was pretty low-key this
year, however I believe we had a good time at least I did and it
looks like Dianne did to. We actually cleaned off the dining room
table and put together a complete Thanksgiving dinner. We did the
shopping on Wednesday Pretty traditional turkey vegetables potato
chips Sweet potatoes living outside we needed. And yesterday we just
put together the meal sat down around six o'clock and chow down. We
had a bottle of wine which kind of amazed me. We stayed up pretty
late I went to bed probably around 11:30 PM really thought I was
going to do okay but no I struggled through the night woke up around
315 and never really got back to sleep.
I'm getting sleep deprived to the point
where I'm recognizing some behaviors I had when I was working
full-time sleeping very little. That thing where your doing something
that also find yourself asleep. Even to dictating this post I find
myself doing that. I close my eyes also I'm in this mini dream
state.
Keep an eye on this for the next couple
days and see what happens I would sure hate to see this issue I am
having wrecked my holiday season anymore than it already has. So
let's keep my fingers crossed
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