I spent half of my weekend laying down doing “Butt Rest” in fact Yesterday Dianne was in and out applying hot packs to the butt area in an attempt to soften up the callous and debride the wounds which have amassed a great deal of scar tissue and callous over time. I really did not relish having to spend the day in bed but then again if I can act proactively I will be able to sit up for much a longer, pain and stress free . So time down is just something I am going to have to start accepting as part of my over all plan to survive this point in my life. I mean poor skin issues could be a lost worse for me. I personally know quads who have been down for years, literally year before the wounds eventually took their lives.
I have the technology, books and I hope patience to make this practice a positive experience instead of something to be loathed. I think I would even consider this form of maintenance even if it took one day of my weekend per week, it is that important.
So I am lucky, really lucky, my skin still heals fairly well, I have the aforementioned resources and a family who really cares for me—so few of the people with disabilities I know has these positives going for them—I just need to take the perceived blows life sends my way and just suck I up
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