I think we're going to make it!
Beginning last week you might remember, that we significantly cut
back on the amount of home health attendants coming out to help me in
the evenings and in the mornings.We are currently having my older
brother stop on his way to work in the mornings to help me dress and
transfer to my power chair. In the evenings we have one attendant
command three times a week to help shower. Dianne has taken up
slinging me up, inserting this suppository and then getting me to bed
following my bowel movement. On the weekends we've given my brother
those off and believe it or not we've been doing pretty good. When
I raise the bed all the way out Dianne does not have to bend down to
get my shorts on and shoes. We again raise the bed up as high as it
will go which greatly assists in doing a gravity transfer from the
bed to the power chair. Luckily the power chair has ability to tilt
back significantly And I can wiggle myself up to the chair.. I still
have to be careful to make sure I have my shorts pulled up as high as
they'll go otherwise they tend to crawl down the rest of the day.
This is okay for weekends I think will do all right. Again the
savings are significant.
I'm still a bit concerned as to having
my brother so involved with my life but really who else better. He
reminded me when I asked him if he thought this was too intimate a
job and looked at me sidewise and said don't you remember when you
looked at our house? I dressed you put on your Texas catheter every
morning and put you to bed at night. What's weird is that I have
little memory of that happening. Oh I accept that it had to happen
because really, I was not functional enough at that point in my life
to take care of myself. Putting on a condom which is glued to the
penis is just a question let alone dressing myself. So he definitely
knows what he's getting into. And like he says as long as he is on
his way to work and the job of getting me up is fairly easy, we visit
a little but actually we are totally focused we could probably do
this procedure in 7 to 10 minutes he could be on his way. And
hopefully the weekend gives him a bit of a reprieve not that he
sleeps in, mind you but still just one less thing one has to do on
one's time off. I hope he will be honest enough with me to let me
know if this assistance becomes too much of a burden. Be sure
appreciate it..
I still get the feeling that we are
getting by only by the skin of our teeth, just cannot fathom what
challenges are on the horizon. However I need to have faith all
things will be done as they should be done and I have to put my faith
and trust in a higher power. Which I can do it is just scary
sometimes.
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