I'm coming up on the conclusion of my first month living out on my own. bills will be coming too and I have to admit I'm a little freaked out. I just hope I have enough funding coming in to cover what I have out. I think I do, at this point in time if my benefits come in as expected. Yesterday in an explosion of proaction I called my provider home health providers ie attendants and ask what's the monthly statement would read. I was pleased to find the total with in my budget. I see if I need to endure a few of these kinds of months so I can get a Baseline of what my life's going to be at least financially.
I was Ill this week at one time running a temperature can coughing significantly and not sleeping through the night. In those Quiet Moments, in the middle of the night, I was getting kinda spooked at the idea of not being able to take care of myself or my life. I just cannot seem to keep my apartment clean. I've dropped things everywhere,thee carpet is toast. I hope to vacation today a little. I am terrified at having to give up my chair for repair. I don't have a backup, not really. I thought I was going to be able to use my manual in chair but I don't thinik this going to really work. I am not a young man anymore. I don't think I could really ever keep house. I think I always needed some sort of maide a backup of some sort. I may still have to figure out something like that if I plan to stay living independently. I'm hoping most of those thoughts were propagated by the illness and the fact I was alone on a typically family loaded day. Although, I do tend to keep away from these events as far as I can still. I had my night staff leave the vacuum cleaner out and plugged in in the hopes of me actually running it over the carpet a little bit today. Typical Tuesday morning meeting cancelled leaving me home slash in the apartment. I'm actually feeling pretty good and trying to keep from going out in the cold but if I have to I can deal without problem. I am cooking today my unit reeks of onion and garlic... I love it.
Tuesday, November 29, 2016
Saturday, November 26, 2016
My Thanksgiving
The days become cold at least by my standards. I've got to keep in mind that I'm looking through ill colored glasses. The cough which is been playing with me for the last couple days I finally decide to get serious. The night before yesterday I was up all night sure I had a fever and I was coughing never ending cough. Of course I did bring any of those kinds of meds when I moved. Luckily my brother Carl called and asked if I needed anything. I have course told him I needed ibuprofen cough medicine cough syrup and I even threw in some throat lozenges. I was a zombie all day. They brought me down a Thanksgiving dinner from upstairs. It was okay I appreciate the inclusion but it wasn't what I'm used to Dianne and I could really kick butt on Thanksgiving dinner. I pretty much watched DVDs all day. It was not a real productive day. Today is not much better however I did feel good enough to get dressed but I didn't yesterday so I just hung around in the robe Dianne at made me couple years ago.
I really wanted to be in bed and use the medications to help me sleep and get caught up a little bit but it was just such a weird night. I found myself sitting in my chair like going over the right side chair with a chair everything I did seemed to go wrong. I knocked everything out of my nighttime box more than once I barely had the strength to put the stuff back in it periods the first time I tried to transfer into bed my foot got caught in the footpeddle padding of the chair then wouldn't let them go I struggled with this for about a half an hour. Finally I was able to free my legs by tilting back in my chair and that finally helped had to reach them completely out of the foot padding on the left side. spirits finally I was able to free my legs by tilting back in my chair and that finally helped had to reach down for my leg completely out of the foot padding on the left side. In the trauma of everything I ran over my bed controls for the bed boy was I bummed luckily the buttons still work and I have found the top peace and Jim came over this afternoon and put the thing back together it works just fine. I got the heat turned up to 75 it's freezing outside ,snow fell yesterday then maybe more tomorrow. I just don't know how I'm going to make my trips to the market but I'm sure I'll feel better once I feel better and I'll be able to get the Market just fine.
I continue to worry about my ability to live independently alone. It's spooky at how many assists i need during one day.
I am still living on drugs. I'm sure everything will look different tomorrow or the day after or the day after that...
I really wanted to be in bed and use the medications to help me sleep and get caught up a little bit but it was just such a weird night. I found myself sitting in my chair like going over the right side chair with a chair everything I did seemed to go wrong. I knocked everything out of my nighttime box more than once I barely had the strength to put the stuff back in it periods the first time I tried to transfer into bed my foot got caught in the footpeddle padding of the chair then wouldn't let them go I struggled with this for about a half an hour. Finally I was able to free my legs by tilting back in my chair and that finally helped had to reach them completely out of the foot padding on the left side. spirits finally I was able to free my legs by tilting back in my chair and that finally helped had to reach down for my leg completely out of the foot padding on the left side. In the trauma of everything I ran over my bed controls for the bed boy was I bummed luckily the buttons still work and I have found the top peace and Jim came over this afternoon and put the thing back together it works just fine. I got the heat turned up to 75 it's freezing outside ,snow fell yesterday then maybe more tomorrow. I just don't know how I'm going to make my trips to the market but I'm sure I'll feel better once I feel better and I'll be able to get the Market just fine.
I continue to worry about my ability to live independently alone. It's spooky at how many assists i need during one day.
I am still living on drugs. I'm sure everything will look different tomorrow or the day after or the day after that...
Tuesday, November 22, 2016
Challenge Time
The challenges never stop. I was actually in a pretty good mood this morning upon waking. it was earlier than I anticipated, the time that I walk and could not get back to sleep, but still I was pretty excited about having a day to myself. no commitments nothing to really leave the apartment about just working on the apartment itself. I was also excited about working with my friend Duane, who indicated he would help me get my printer are a color printer. I transferred into my chair no issues, started the coffee and then did my morning routine ending of course being dressed. Then without warning the left arm of my chair fell off.
The arm is attached to the chair by a mechanism, a button that when pushed detaches the arm from the chair when it works. Somehow I have destroyed this as I do everything. I have broken the mechanism. The part fell completely off. I think I was kind of in shock. I scooped up the arm put it in my lap I'm just sort of rolled around my apartment aimlessly knowing what I had to do was too Saddle Up and head into town to Alpine Medical. I called the resident advisor comma Jimmy who came down and messed with my car in a little bit and sort of got it to stay on but it was not going to stay and I had to get into the shop to see if anything could be done , all I know was that it was going to be a long holiday weekend if not longer.
I was kind of proud of myself I rolled out and got to the bus stop and into town at good speed. I know they weren't happy to see me rollin to Alpine especially since they're really big on making appointments. Mario is the head technician there at Alpine Medical. I have developed a respect for this guy over the years that I've had to work with him. I don't know how good he is about pulling rabbits out of hats but so far is that okay with me.Mario looked at the arm and at the damage and agreed there was nothing that could really be done a side from ordering new parts which is really going to be time-consuming and expensive . However Mario cinched the arm back into place on the frame of the chair. A temporary fix, at best,and will greatly limit my ability to rome over the next couple days if not weeks if he can push chair repair. Now the case I will be without my power chair which means I'm going to have to really focus on using my manual chair which kind of freaks me out.
I was ready for a holiday-- not another challenge but looks like challenge it will be, not to say anything about the challenge of cost, already the estimate is closing in on two thousand dollars!!!!
Can any one say "Thanksgiving "?
Monday, November 21, 2016
Rain
I was hoping today would be a slow day. I knew it was going to rain today so I planned on staying in the apartment doing things, apartment things. However, I did get dressed got my shoes on and was puttering around the apartment when I got a call from Jennifer. She let me know that I have not paid November's rent! I was astounded. I think what happened when I moved in because it was late October just a couple days left and I paid for those days and the deposit. So I just think I figured I had already paid the rent for November which I had not.
Clouds had come in over night and I think there had been a little rain in the early morning but today doesn't look too wet. Either way I had to get over to Mountain America and get some checks since the apartments will not take credit cards only checks... That is so weird. So I saddled Up and headed out. By this time it was 12 noon. And I knew nobody was going to be there over lunch so I just sort of dallied here and there. Imagine my shock when I finally got to the bank in the bottom of the Student Union building at Salt Lake Community College and realized they take their lunch from 1 to 2. So I had to kill yet more time but I finally got blank checks. I stopped at the market on the way home I got a bag of onions and other things I probably didn't really need like two packages of country ribs pork ribs. They are on sale I figured it was a good thing to do. Coming home from the market the rain decided to begin in earnest. I got home just in time has the real rain started. It was great to be home in my little apartment.
It's going to be wet now and cold as we enter this Thanksgiving week. At this point I am planning Thanksgiving here at the apartments courtesy of Salvation Army and Utah non profit. Actually I'm okay with that. Where else would I go?
Clouds had come in over night and I think there had been a little rain in the early morning but today doesn't look too wet. Either way I had to get over to Mountain America and get some checks since the apartments will not take credit cards only checks... That is so weird. So I saddled Up and headed out. By this time it was 12 noon. And I knew nobody was going to be there over lunch so I just sort of dallied here and there. Imagine my shock when I finally got to the bank in the bottom of the Student Union building at Salt Lake Community College and realized they take their lunch from 1 to 2. So I had to kill yet more time but I finally got blank checks. I stopped at the market on the way home I got a bag of onions and other things I probably didn't really need like two packages of country ribs pork ribs. They are on sale I figured it was a good thing to do. Coming home from the market the rain decided to begin in earnest. I got home just in time has the real rain started. It was great to be home in my little apartment.
It's going to be wet now and cold as we enter this Thanksgiving week. At this point I am planning Thanksgiving here at the apartments courtesy of Salvation Army and Utah non profit. Actually I'm okay with that. Where else would I go?
Sunday, November 20, 2016
Turn Up The Heat
I like to cook, in I love
to cook. I really have not been able to cook since stenosis 1 and I
really missed the experience. I don't know what I like about cooking
so much perhaps it's the concept of creation and sometimes when you
make something other folks like that is filling as well. I don't
have a big repertoire just things lik bread, egg foo young, breakfast
many different variations, cookies you know the usual. I like
putting all the ingredients together and having The mixture come out
something delightful.
The kitchen I have here at
my new apartment is sort of kind of wheelchair accessible.
Everything is lowered and that's about it. Don't get me wrong I'm
totally thankful for this kitchen, granted electric cooking Versus
gas and my gas range I could totally roll underneath it to do some
real serious.. So I have to approach this electric range from the
one But cooking with the electric range is doable just l not as
aesthetic is gas.
The sink is pretty much
the same situation. However,, I did get management to remove the
wooden guard plate underneath the sink which allows me to get further
underneath the sink in my power chair.. This certainly makes doing
dishes much more bearable.. Again, aesthetics suffer for access at
least in my case..
But I really miss is the
lowered counterspace/work area. Dianne had installed the six-inch
line of counterspace lowered for real charities – – it was
wonderful. I have been really not cooking much just because of the
limited surface space and lack of really accessible work area.
However, my brother Carl fashioned me a piece of whether the handle
which allows me to turn the only drawer in my kitchen, Usable working
space. Last night I made meatloaf, to cook today, and the pullout
work area is perfect for me to enjoy prepping ingredients for the
meatloaf a piece of cake. And speaking of cake I will now have a
wonderful area to mix of cake I'm pretty excited.
Yesterday,, I was
actually making breakfast. It was a Saturday breakfast kind of like
Cheerios, milk, Banana and of course toast.. I recently restored
toaster oven I brought over from t Utahna house. I have used the
toaster almost 20 years and it was pretty hammered an crusted. I was
going to throw it away.. But when the toaster oven donated me by my
manager here Begin to disintegrate I pulled my red toaster of an out
the garbage and spiffed it up. Actually, now I love the toaster,,
and everything works especially the toaster part. Anyway yesterday
morning I was toasting my bread and all the sudden great screeching
and foreign sounding and lights flashing began. I of course, I of
course was startled but I figured Wow a fire drill!I opened the door
rolled out into the hall and then realized the chaos of noise was
coming from my apartment alone. I set off the fire on! I was bummed
out thinking that every time I wanted to cook I was in set off the
fire alarm. When the alarm goes off, I must contact the resident
assistant (R A) and then comes around and shuts off the line.
Donna and Jimmy are my
resident advisers. Donna turned off the alarm and assured me what
happened was normal and that I should not be embarrassed or weirded
out in any way.. I just need to open the outside door a crack when I
cook.
Thankfully,, unlike the
fire alarm at my Utahna house, this alarm does not go to the fire
department. I'm cooking again like I mean kind of fun fire alarms and
all.
Saturday, November 19, 2016
Youngest
I don't know if I've
mentioned this before but I'm the youngest person in this apartment
complex in I'm 65. Granted,, I knew this was a senior living
apartment complex when I moved in but I didn't realize just how
senior this project is. You pretty much have to be independent to
live here but many folks myself included have home health
professionals coming in to assist off and on throughout the week.
What's interesting though is that I find myself looking for somebody
who looks like me when I roll around the facility and take part in
some of the events the facility offers. I wonder just how similar
these feelings are the folks of color are minorities. When they live
in such a white culture as Salt Lake/Utah and they don't see anyone
who looks like them. It's not like I dislike my neighbors and fellow
apartment residents it's just that they are so much senior than I
that I find myself listening to them out of respect and supporting
them in their discussions as opposed to having anything, with me. I
don't know if that makes any sense but a good case in point is
Sandra (the name is changed for whatever reason) Sondra is a
first-generation German Sandra is really nice . A fourth Sandra's
right foot has been and continue and she has a great deal of phantom
pain.. Many days she sits in a four-year that I have to pass exit the
building to get on my way.. I always stop and visit with her dog but
I know that doing so will basically rehash many of our already had
conversations. I would just as soon not have to repeat some of those
conversations. I stop and visit we have a bit of a conversation and
then I'm on my way. I feel for her truly do but I just can only
spend so much time rehashing.
Jimmy And his wife Donna
are what is called resident advisors. They are folk set aside by the
property owners as people who can help you when you have problems..
Today washing clothes when Jimmy came in to watch. More often than
not Jimmy wears tie-dyed clothes, he has fairly long hair (almost
down to the shoulders) and a fine beard.. In fact I understand he
plays Santa Claus for a number of buildings is property management
program owns. Jim is a nice guy,, he's very good with his hands, can
fix almost anything seems to help everyone. Jimmy's two years and I
– – so I need to refine my statement that perhaps I'm not the
youngest person residing here. But then again Jimmy's almost
management. But I feel myself being pulled towards Jimmy more and
more. Is someone close to my ag and I can tell we have quite a
few things in common. I suppose this is what I'm talking about a
wish there were more residents like Jimmy here. Now I just have to
be careful but I don't wear him out.
Friday, November 18, 2016
A Tad More Human
Yesterday I got a table. Actually I got a table and chairs four chairs and a nice round table with legs long enough that I can actually get underneath the table with my power chair. I've been meaning to get this piece of furniture for some time butthead really not been able to figure out how. I was hopeful earlier in the week plan the manager of this apartment complex indicated what are the tenets who just left to go into a nursing care facility has left apartment full of furniture and she would check to see about the table in that unit. I was disheartened later to find that she said the table trashed and all the other materials for sale tobacco smoke laden she couldn't see it going into my unit. I thought so that's good no problem and I thought in the back of my mind how long is it going to take to find something? Then a day or two ago she indicates that she may have found something but she's not sure. The furniture was out in front lobby of the building going to take a look at it I would have first dibs on the furniture.
When I saw the table and chairs I was a little dismayed what kind of intrigued at the same time. My biggest worry was how my going to get more furniture in to my fast-growing small apartment? But I was willing to give it a try. The on-call assistant has had some hip replacement work lately you cannot really lift a lot of stuff so we had to wait until we could get some other help to get the table and chairs down to my unit. I was worried when we did get the items there that the table was too big to get in through the door. Jimmy came down and had moved enough stuff to know how to make these kind of issues. You look good in tilted and soon the chair and table or inside the apartment. It's tight but not as bad as I thought it was going to be and after looking at many of the other folks Apartments I think mine will be ok. I'm having to move a lot of stuff in particular my Saratoga silver but that's okay now I have 4 chairs that people can sit on if and when they come to visit and find Round Table but I can get under and eat at and on and I'm feeling just a tad more human.
Thursday, November 17, 2016
Options
It seems like there is
always something I'm trying to be worried about. Don't know why but
that seems to be the norm now. Perhaps I nee the tension, stress or
focus get through the day.
I have known for a couple
of weeks,, ever since my chair started actively falling apart, that
I'm going to have to get some attention paid to the device which
means that I'm going to have to give up the chair for however long
it's going to take to do the repairs. Well this became a reality this
week when I went into Alpine to have chair appraised . I think
Alpine's technicians have become sensitive Become sensitive to the
problem of having to give up your primary means of mobility for
however long it takes to repair. So now they tend to want to get all
their ducks in a row so that when the time for repair does comeyou
are without your care the least amount of time possible. They quoted
me three days I would be without my chair.This seems like an
eternity and quite frankly scares the hell out o me sort of. They
have even suggested that I could use a loaner chair during the time
of repair. However I have learned from experience the care they
usually supply is a real dog and actually very painful to use for
extended period of time i.e. three days.
I've become quite
dependent on my power chair. I've never been this dependence on the
power chair at any point in my life. Before I used by manual care at
home, pretty much, and power chair I used to get back and forth to
work and to use during the day. I was strong then I could transfer
into and out of my chair and back again. I had my room set up so I
could make these transfers safely. My left side is much weaker now,
plus since the operations. When I was in rehab I kind of worked at
using the manual chair. I could push my manual care okay but
transferring was an issue. I should've been working on ttransferring
the last couple months but I have not. I have once again become
reliant on my power chair… It's just easier. Now,, I need to
really look at getting back in using my manual chair.. I'm going to
have to use a manual chair I think over the three days of power
chair repair. If I can get a power chair, as a loner, with enough
mass that I can use it to block my manual chair during the transfers
this might work. I have a power chair but it's at the house and I
don't know I don't know the status of any of that material. Even
though I cannot use the power chair for transportation I might be
able to use it to block the manual chair during transfers. I also
have the option… Maybe, to see if the resident advisor here at
Plymouth View might even come by just make sure a transfer okay.. He
gets up around 430 or 5 AM which would work for me. It's option it
just might work for that period of time.
Once again, I feel so
fortunate,, to have options. Options are gold spend them wisely
Wednesday, November 16, 2016
What Should Have Been!!
(This post should have run yesterday bit I did not have any way to access the Net,last night.)
I'm going to meet with
nurse Cratchit this morning after I got up had breakfast and went up
to the second floor to the computer lab to type out the items I
needed to visit with the folks Alpine Medical this afternoon. My
appointment with Alpine was at 1 o'clock so I figure that had more
than enough time To print out a document and then meet with social
worker. I was a little frustrated been trying to print out my
document because the printer didn't seem to work to about seven
minutes to realize that someone had turned the printer off.. This was
something I can fix it I did. That was off to the social worker's
office. There is no one there. I looked at the times posted on the
door and what I had read as Monday through Friday 8 AM to 4 PM was
actually Monday Thursday Friday at those times. Of course today is
Tuesday and no one is at home. It certainly solved that problem for
today.
It was getting close to 11
o'clock when I left the apartment to begin my trip over to Alpine .
It was a good day for riding the bus and I enjoy the last of the good
weather for a while stopping off at Taco time for lunch and to kill
little time before my scheduled meeting .. It was then that I
noticed Cinema 16 movie theaters. And I thought wow! What I don't take in a
movie? So just for the reason that I can I decided I would go to
the new Marvel movie Dr. Strange. I figured it wouldn't take long at
Alpine could I know it was basically going to be exploratory.
I got to Alpine Med iin
good time and had about 30 minutes to wait. I checked out the new
power chairs,reclind to my chair to take some weight off my butt And
goofed up on my tablet trying to use their Wi-Fi. The Wi-Fi was way
too slow so basically I hung out. I didn't pay much attention to the
fact that I goTo the shop around 12:30 PM and of course everyone was
at lunch. But eventually the technician got to me we went over my
chair near a bunch of things wrong. He tried to hide the glee and
dollar signs in his eyes what the cost is going to be but we're going
to run it past the insurance and see what, if anything, they will do.
I have my doubts but will have to do something..
I felt like a kid playing
hooky when I bought my ticket to the theater.I timed it perfectly I
got popcorn and candy $20 worth of three items. And made my way to
the theater. It wasn't a great but it was entertaining and at 230 in
the afternoon almost deserted. I had a grand time. I'm not proud of
myself for having sort of Ferris Bueller's Day but it was kind of fun
and I think I will do it again real soon just not the wheelchair
stuff.
Tuesday, November 15, 2016
I Really Did The work!
I actually have a posting for today. However trying to figure out how to load it was extraordinary. I wrote The Post after I got home from the movies and when I finally have it done I tried to Post-it from my laptop of course, that wouldn't work I couldn't get a Wi-Fi uplink. Then I tried to load the document By downloading the document from the laptop to my tablet and then posting my documents from my tablet to the internet. And that did not work. My next idea was to load the document to a thumb drive didn't carry the thumb drive up stairs to the computer lab and post from one of those computers since they always have access to the internet. I was shocked when I got up there and the doors were locked!! It was a giant conspiracy against me loading tonight. So this will have to do... It's not 500 Words hopefully it'll do until tomorrow.
Monday, November 14, 2016
New Week! .
It's a brand-new week, it
looks beautiful outside, the weather is holding for this late in
November. I kind of look forward to the cloudy messy days of late
fall or early winter but I have to admit I do enjoy the warm days of
the end of the season. I awoke again early this morning. I was
playing with encouraging thoughts particularly of finding out a way
to work with what particularly my sticks making hooks. I realized
that I have options that I have Not really explored the setting A
mini shop in this area. I mean I'm not going to go full bore – –
but I want to make a couple sticks and I can. I cannot believe how
much I sabotage myself in this particular direction. I just need to
get back to my tools that they're still around or pume wherever I
were to go.
I was Facebook by my ex
brother-in-law – – major born-again – – who I like very
Much. I don't know however if I should be communicating with this
guy right now since he is totally LinkedIn with Diane's family. I
sure don't want to make issues for him are Dianne or myself. So I
thankerchase set of tools minimized for whatever I need – – send
it to go with d him for his continued support and then backed away.
Things get so complicated. Today, I plan to meet with support
coordinator see what she wants. So forward I go
Sunday, November 13, 2016
Nothing Else Better To Do
It's Sunday afternoon and
I'm waiting for my clothes to dry. I feel fortunate because this
place and living has really nice laundry facilities. They have a
laundry facility on each floor: three washers and three dryers. The
cost of the license $.75 or three quarters which is the same for the
dryers. The drawback on the dryers is that it's $.75 for hire along
the dryers run. In some laundromats I've used over the years you
could pay for the length of dryers use that you want 10 sense of
value a few extra minutes or $.25 or whatever. This is $.75 if it's
not dry then you're in for another $.75. However I must admit I can
usually get the message done with one go round of $.75.
Last week I broke one of
the dryers or the door to the dryer I was using. I used my hook to
pry the door open and broke the plastic handhold to uphold the door
open. I ended up pulling the plastic and hold completely out of the
door on the upside with the plastic device gone I can get my fingers
in far enough to pull the door open. I of course reported the issue
and they were very generous and forgiving in this week the door and
then fixed the handhold replaced and the device almost inaccessible
to me how ever I was much more careful this time around when using
my device to open the door.
The first floor laundry is
Just down from the foyer to the front door. There are a number of
very nice chairs and sofas in this area and is a gathering place for
many of the apartment residents to gather after walking their dogs. I
have not mentioned the fact that it seems that almost everyone has a
small dog and of course all dogs need to Be walked. The dogs are
reallywell-trained as a rule,Pugs and poodlesAnd all kinds of little
beasts. Today there were four living residents discussing all
manners of political events the past week and their displeasure
over the government and the President-elect. It was pretty
entertaining. The ladies were quite up to whatever government gossip
is going around about the President-elect. In the 40 to 45 minutes I
was there there is only one incident on gossip about what the other
building residents seem to lean a lot of clothing from dumpsters.
This residency be quite adapt and getting nice-looking pieces of
clothing. Have to admire her reminds me of my mom had my mom and able
to do dumpster shopping. The conversation was intriguing and I was
pleased that they allowed me to be part of their commune. As much as
I enjoy the inclusion I had to get my clothes and get back to my
apartment. I want to go to the market and purchase a few things for
the coming week and to get out and enjoy the sunshine. After all it
is Sunday afternoon on a warmer than usual November day. I have
nothing else better to do.
Saturday, November 12, 2016
Beware
I continue to transition
into my new apartment. I don't know why I am at such un-ease. The
unease is not necessarily intending to which I felt in other
situations but I do have feeling of things not being done right
or that I am not doing things correctly or will be not doing things
correctly when the time comes. First and foremost being the
reordering of medications as well as communicating/dealing with
Medicare and Medicaid, PEHP and other bureaucracies which have
control over my life.
The facility I live in, Plymouth View, I am beginnng to realize, I may have got more than I bargained
for. I was stopped by this individual who lives here to find out
that , in fact she works here. I think she's a social worker. She
stopped and asked me what I can meet with her – – this of course
sent up all kinds of red flares And memories of Other such requests
from people over my life i.e. teachers, professors, employers.When I
asked her why he said to work on my Service Plan.. I dodged setting
up a specific Time and rolled away thinking wow. I found out that
she's the Service Coordinator. This information kind of spooked me
but then I figured why not? A lot of these folks do need somebody
like this to help them with their issues and then I thought hey!
I could use somebody help me with MY issues.Then, I felt a bit of
humiliation why my needing this kind of assistance… Why do THEY
think I need this kind of assistance. What kind of place do I live in
if I have to be part of such goings-on? I've been pondering this
ever since she made a request. I found her office is way up on the
third floor of the building I live . I have gone up there couple of
times trying to meet with her to find out more about this Service
Plan. And trying not to think that I live in some kind of senior
institution… But maybe I do. Is that bad? I look around at my peers
able-bodied and those disabled living independently in going on in
their lives like real people. I'm trying to hammer my living
situation into something that I can wrap around my brain and except.
I needed to find a place to live immediately and displays popped up…
Actually I looked for a place that had accessibility. I knew this
organization had such facilities and may have had the unit open and
he did. The unit was opportunity and I grabbed the place immediately.
I'm a quadriplegic, from 65 years old, I'm having to live on my own
and I found a place that I can do that. I'm using programs and
services which I've always thought were for other people that I would
never have to be like or use myself aand yet here I am. I should be
happy, I should feel really… And I do. I am happy and I'm thankful
And yet something feels just a little off. I feel a little like Jack
Nicholson in Flew Over The Cuckoos Nest.
I just
have to keep an eye out for Nurse Cratchet.
Thursday, November 10, 2016
Bottom Concerns
Sometimes I get so
discouraged and I do not know If that is a big thing or a little
thing but it's a thing just the same. I noticed the last couple of
days That might but just got more and more tender. About this time
last week but I was so worried that I called Dave Riser see if I can
have him look might but see if I had skin breakdown but I had my own
health care person look at it she said look fine. And so I went all
week thinking it's been pretty good but last night I felt the ruff raised area and I'm thinking breakdown is either imminent or
has already occurred. And I forgot to ask Honey to check my butt for
breakdowns. So I don't know if the increased amount of traveling I am
doing is irritating my butt or is it just my cushion in general as
The cushion is exactly turned against me and is doing more harm than
good. I know I spend a good part of my day in the tilted back
position Taking as much weight off my right cheek or rear end as possible.
I really want to put the
burden of responsibility on this power chair I am sitting in. The chair now is so
warped out of Shape there's no way my body had a chance of not being
damaged. But maybe I have clouded my own vision by denial. Maybe my
body is so work out of line from 50 years stenotic stress pulling
my frame massively to the right that I cannot sit straight ahead of
what intervention technology throws at me. Wow. That would be hard to
grasp something to back my mind's whispering that this is the way it
is, it is true and now I am so scoliosis nothing can help me. Be that
as it may,, be that totally true I refuse to accept it to live my
life as well as I can.
I think I'll try one more
time to work with the physical therapist are an occupational
therapist or both outlining another chair or system that might help
me live independently as pain-free and body safe as possible.
Wednesday, November 09, 2016
On My Own – – Sort of
I know I'm going on and on
about living on my own, living in the apartment and digesting to all
the love. What I'm finding this challenge of adjustment is like
everything else which is happening to me at this point in my life.
Starting out a new at 65 is a totally different experience of
starting out at 30, My age when I had my first divorce. I was working
full-time and had a couple good friends who helped me through this.
Working full-time is really insists – – I didn't realize how much
– – not having to deal with the pain/boredom/futility of being
alone. Going through this now, being much more dependent than I have
ever been since my accident, having to employ on health people and
keep myself occupied and out of trouble really is a challenge. I few
things in a weekly basis that I do excuse me focused sort of but then
there's all kinds of time I have which is kind of like downtime that
I feel I should be doing something and I'm not. I'm proud of myself
in that I'm not watching a lot of TV I did go through number of red
boxes last week but those movies are kind of unfulfilling. I'm glad
that I have read boxes close as I do but I think I'll wait on them
and watch them only on special occasions.
I'm kind of proud of
myself. I have begun cooking earnestly. I note that I'm cooking a lot
of starches and fats but I'm eating cautiously and stretching out a
can of Corned beef for a number of meals rejecting puts me in my
1800 cal a day cycle. I purchased bacon, eggs some vegetables not
much though raw vegetables, Carrots celery and onions. I Even
purchased a pack of steaks which I froze Except for one After
marinating way too long. It's pretty salty and still pretty tough. I
don't know when going to do with the rest of the states I think you
have three more in the freezer. I may get a hammer and pound the
toughness out just for the fun of it. I still have a number of meals
and going to prepare this week. Most spectacular is going to be this
roast I purchased earlier in the week. Beautiful pot roast that I am
going to cover with Lipton soup then cook for 6 to 8 hours in my
crockpot. This should be a lot of fun make the place now really
great inhibitions that eat for a couple of days. The meat is way more
than I need I feel guilty that way but I figure I'll do okay. What
about the roast I also bought 2 pounds of hamburger 1 pound I froze
that I want to make into a meatloaf the other I fried up with onions
and garlic and have been using it with Corn tortillas and purchased
about the same time. Cottage cheese and grapes, bananas and
orangesI'm doing okay for being 65 and on my own. I doubt I could
have done any of this on my own say havingthe help from family and
friends has made all the difference. I hope I can sustain this level
of independence soon earlier I'm going to fail,, I'm making what can
you expect? But it won't be today.
Monday, November 07, 2016
Arm Bike
I have not used my
Saratoga silver arm bike in at least a week. A week is how long I
have been at this apartment. Initial stress of moving is now past
the trauma of letting go of things I've held onto for decades and
downsizing and then orchestrating the move over to this property.
Then reversing that exercise by finding a place for all the things I
brought with me in this living space.. I did a lot of stuffing.
Stuffing this here stuffing that there stuffing things everywhere I
dare. Little by little bit things are finding a place to be. Granted
it may not be the final place they will be the the of being right now
in the place that is best for them which is best for me.. The
apartment still it's a mess. The carpet gets dirtier and dirtier as I
move back and forth day and night. I've got most the cans of food
put away there's still a box or bag that needs tending toBut I at
least have them out of the way behind the closet door and pushed off
into a corner. I have my little desk set up so I can address letters
and cards And maybe even sketch.
I feel like Marty Sheen
in his role as Capt. Benjamin Willard in a great film Apocalypse
Now, where the captain is in his hotel suite waiting for an
assignment and he seems to of been waiting a great while. He says
each day he loses his edge each day gets a little more sloppy need to
be back out in the field. I need to be back on my arm bike,
everyday.. Every day I feel like it a little weaker, I feel I lose
a little strength or ability in my left side. This may be my
imagination that's how I'm feeling not being able to use my arm bike
like I was. I know things are just settling down, and I will be able
to use my arm bike again shortly but until then I'm feeling a bit
anxious. Thank God I set up the rickshaw on the patio outside my
apartment. I'm able to use that on my regular schedule of every
other day 100 reps. This is great what I need for now. This led to
some physical regimen and something to keep my weight At bay, all
though I gained a little bit last time I weighed three nights ago. I
wish I could get some physical therapy going
physical therapy would be
great right now – – I need to have to work on this.
I am waiting for people,
I'm waiting for someone to move my arm like down or up to the
exercise room where it'll be installed for me the use of their. I
have kind of indicated that the people could use the Saratoga.
Makes me a little nervous thinking of the people be turning the crank
and messing with the numbers.. But that's okay really if they wear
it out then I get another one I can do that right now. Not that I
would but I could perhaps a device not as sophisticated as the
Saratoga Silver but something that allow me to work my arms and push
up my cardio.I finally moved the last two boxes that were blocking
the Saratoga and push it over to a outlet, plug it in and do some
pumping.
Saturday, November 05, 2016
The Seventh Day
This is the seventh day in
my new place. This is my first weekend since the moving and it's all
pretty interesting to me. It's a slow day I guess. I actually got
some decent rest compared the last couple days. I got up had cold
cereal, made coffee did my morning routine just to enjoyed the
place. Had to take DVDs back to the Red Box. This was also an excuse
to do more shopping. I'm getting a little worried about myself. Kind
of shocked my brains out. Today was almost nothing but impulse
purchasing. I sort of justify the purchases I am making To myself
by replenishing the refrigerator and the closets. This morning I
bought mashed potatoes – – already made mashed potatoes – –
a slice of ham, bacon, a roast, four large Hershey bars potato
chips, and the bag of Fritos. I can justify all the stuff but do I
need it?No! Something is going on in my head I am sure of it. Got a
couple more movies too ...I'm going to spend my evening watching
movies.
I'm getting a little
frustrated with the Wi-Fi setup here at Plymouth Place. I was
thinking they had their own IT guy but they don't. They have the
IT guy of the parent corporation and he just get here sometimes. I
don't know if it's my computer or their spotty WI-Fi but yesterday
morning and afternoon I was pretty much able to get out on the net.
Of course last night, after working hours, I was dead in the water I
could not get out on my laptop. I think it out on my other pieces of
technology just not with the laptop. I don't know why this is but
I'd sure like to find out. I really could use a good connection that
worked anytime I needed . I did get my cable operational I guess
that's important. I feel pretty pathetic that I insisted that the
cable be working and now I have no desire to watch anything offered
on our cable. Our cable offering does not come with any premium
channels ire. HBO, Showtime etc. Am I becoming too elitist?. Actually
I'm beginning to think of the just happy watching the DVDs I already
have and which I might acquire. And at the Internet is working on
this machine I can actually enjoy a great deal of offerings from
Amazon Prime.
Yesterday was my poop an
shower day. Jennifer was going to bring a new person,, which she did
by the name of Honey.. Honey seems an interesting CNA. She small
stature, has red hair, looks significantly younger than she is. She
is a nice person and I think will do well as my CNA since it sure
looks like Jennifer is going to jump. Which is okay as long the job
gets done. Looks like were going to Monday Wednesday Friday schedule
and just one segment where we go three nights Without pooping. I
did get the go-ahead To call the agency if I need to have a bowel
movement. Actually, I'm hoping I can take care of myself and I
could if I could just get back in the chair once I do my elimination.
Something to work on. I'm still waiting on billing cycle before I
pass judgment on these folks.
I think I will begin a
movie considered the chips are candy bars and enjoy my Saturday
evening
Thursday, November 03, 2016
Reasonably Well and Happy
I have been in my unit now almost 5 days, it feels like forever, but that's good. I really like it here. I like the people, I like the place I even like local/ neighborhood. My son has been great coming over almost every other night and much of the weekend to work on getting me squared away in the unit. He was over tonight working on my computer and carrying some the moving boxes away to the garbage.
I almost feel the same way with my new home health provider but there just seems to be some chinks independently the armor. as of yet nothing too awfully bad but enough that concern raises its hideous head. Just little things like she was 15 minutes late yesterday. She said she was waiting at the front door waiting to get in she did not have the security code for the front door and had to wait till somebody came in and come in with them. And she leaves me no paperwork nothing to sign, nothing to indicate that she'd been there, nothing to indicate that I had paid her - - actually I have not paid her yet I'll be interested to see what comes the first billing cycle. However the knife Cuts both ways I do not have records to show IRS that I have paid her / company for services rendered. This could come back to bite me on the butt She said or led me to believe she would be my only care provider and now she's introducing me to somebody else who will be trained to provide my ddisability needs so there be will a broader client slash consumer base to provide a trained group to pull from if I need to. So I guess that's cool still feels a little funny.
My butt has been hurting that's that's that's all I need is skin breakdown. I was so worried about it this morning I was calling my MD to see if he'd look at my butt to see if I need a referral to wound care. That didn't go anywhere which is just as well because my butt feels OK tonight so I'll just keep an eye on it sure I'm OK and that I do not die of sepsis
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