I never realized how
disabled I was until three years ago when I had my stenosis operation
which left me more dependent than I have ever been in my life. Up
until that point for some reason I is seen in my disability as an
inconvenience but not a disabling condition. Oh, I could sense
something was coming, and I would debilitate but that's something far
off down the line I thought. I did not think debilitation was
relevant to me at the time boy, was I wrong.
Since those days following
my waking from the operation which left me more impaired then I had
been all my life, I began to contemplate the place that assistive
technology plays in my life. Power chairs rocker knives, zipper
pulls, it's and electric beds. I take off almost daily (in good
weather and bad) in my power chair not thinking specifically that I
can be stranded literally out on the tarmac in many times I have
causing me know little about stress. Luckily, each time I have been
stranded out of the tarmac I've been able to get assistance from
altruistic passerby's . I truly appreciate their intervention. There
is nothing more unnerving to me then when my systems fail. It's like
one seconds the universe Superman, hero of independence in the next
second is sitting on the sidewalk at 400 pound piece of art not going
anywhere just been admired by passersby. In that instant the reality
of your disability is brought to bear front and center in your mind.
What is really weird is that you are basically safer having your fail
in publicthen at home.
That is what happened to
me this morning just after 6 AM. For some reason I had woken up
around 4 AM hand had not been able to get back to sleep. Finally
around 6 AM I decided to get up and do some cleaning before my home
health professional arrived. I cooked a roast yesterday and some
other items the kitchen floor was a mess. I had clothes I still had
to hang the washing from the weekend and when I went to actuate's my
pendant to raise my bed so that I might transfer into my chair to bed
would not. The other functions of the pendant worked just not the
raising and lowering of the mattress/bed. The bed was in the down
position, as low as it would go in a new there's no way I was going
to be able to do a traditional transfer from the bed to my chair, I
could about one time but not now. I mean I was stressed, a little
freaked but I knew that worst-case scenario I could call my brother
who would come over and get me out even though he is at work or I can
just wait around in my own health person would eventually show up and
do the trick but that was still an hour and a half away. I laid in
bed and fretted for a while – – there was little else I could do.
Then towards 6:30 AM I left at the front of the bed of and I also
lifted the back of the bed that changes the better to select a chair
and when I did that I realized my hips were very close to the same
height of my wheelchair. I realized if I swung my legs ove r the seat
and scooted to the site of the bed I can throw myself partially on
the cushion of the power chair and then pull myself onto the chair
after which packages the power functions of the chair to set me up.
This I did! I could tell this was not healthy for my chair up a lot
of stress on the front of my chair but I could do it I could make the
transfer.
My home health person came
over and I got my activities out of the way. I called the
manufacturer of my power chair after finding the number of the files
for its purchase. I spoke with a young man named Ben. He advised me
that rather than a burned-out motor which I sort of thought might be
the problem that I should check to see if a wire had come undone on
the side the motor. He said many times this was the situation. Later
on my brother did come over and sure enough we found the wire which
was the culprit. My brother reconnected the wire and then zip tied
the wire into place and now I'm safe from having the wire from coming
loose. Once again I was back in the race. I would be able to get
myself to bed and up again independently.
I'm so lucky to have the
technology I enjoy. I must remain vigilant however not it over
confident and be ready to accept anybody's help, anytime anywhere.
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