For me the biggest
challenge of working with a group like DRAC is that it's an all
volunteer organization. No one really gets paid. And that's not so
bad it's that the volunteers the organization brings in are folks on
the fringe. Folks that are so shunned/isolated from traditional
self-help groups, advocacy groups and the like that there's no place
left for them in the “normal world” but DRAC or people again who
have been so marginalized by society for their peculiar rarities,
disabilities or individualism's they have to be drawn to DRAC's wide
arms. Many folks are angry and vindictive. Some folks will been
discriminated against and to some degree emotionally brutalized all
their life and for the first time taste a little power as they learn
to advocate for themselves. They are banded together with a
like-minded group director whether trying to make a bus system
accessible, the restaurant was stairs usable to a person in a
wheelchair as the able-bodied person who walks up the stairs or a
school or education program that might limit programming or
activities to a certain segment of students.
I think I am a disability
snob. I have to force myself to work with some populations with
disabilities which I feel very uncomfortable with or that I have some
level of discrimination against which is one of my own inadequacies.
One of my biggest pet peeves when working with volunteer
organizations like DRAC is that the constituencies of the
organization have a rudimentary understanding of an issue or law but
speak and act as if they are authorities on the subject, and in some
cases spreading false information. My personal feeling is that these
folks have often hurt their cause more than they've assisted.
Now as I write this blog
my own curtain of awareness is pulled back a little and I am
beginning to understand perhaps the need for me to be more
sympathetic and understanding and supportive of my fellow people with
disabilities. In fact I must confess I am not a great speaker
particularly in public and would rather have other folks carry the
ball. I must allow those without the experience that I have, and
those whohave more significant disabilities then I have, particularly
in the area of communication and appearance and support these folks
to get the experience they need to become more polished and
confident. Everyone needs a chance I know this. I have had these
chances and opportunities and which is allowed me to grow me over the
years. It is now my turn to assist those coming along to have the
same opportunity to grow.
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