I know this is becoming a
broken record but today turned out to be another wheelchair day.
Tuesday is one of the in-between days. I have home health coming in
Monday Wednesdays and Fridays for showers etc. and the best perk of
this hour of home health care is that Dana, my worker, assists me
getting dressed, most of the times this is a luxury that I really
enjoy. However, ever since I've had issues with my main power chair
Tuesdays and Thursdays and the weekends have been really challenging
since I use my power chair so much and myself dressing procedure.
This morning took an
inordinate amount of time dressing. With the back of chair the foot
pedals are extremely narrow and extremely smooth backing of most
difficult to keep my feet on the front place not to mention having
enough grip to allow me to bridge enough to take the weight of my
butt and pulled my shorts on as well as dragging a leg up to cross
the other so I can put my shoes. I was pleased though I got the job
done with time to spare before I had to head out to my Tuesday
morning meeting.
As I struggle to dress
myself, to keep myself independent, the back of my mind I keep seeing
a time when I'm not going to be able to perform these tasks.
Possibly, I might be able to do a little bit more self-pay or more
home health services but the inevitable is out there coming sure is
dark follows sunset. Today is Tuesday so I was at the Assist meeting
and I felt my backpack vibrating and took me a minute to realize
since my cell phone which again somehow turned is ringer off again.
The calls from my wheelchair shop. My chair was ready, so those wires
in my motor melted. I don't know what they did but they got the chair
running again but warned me that the fix is lightweight they really
need to replace the wiring completely, the whole harness which once
again will take authorization from Medicare.
The chair showed up around
2 o'clock. I had the driver for the chair in the bedroom and once he
left I sidled my backup chair next to the repairs chair and into
transferred. Something told me I should've had somebody there to make
sure everything went okay but no I did not. The transfer went okay
but the right arm of my chair which I have to lower so I could scoot
across somehow got stuck beneath my wheel. The more I try to free the
arm the worse it got until I finally had to call the office which led
to more frustration. They tried hard but they could not do anything
we have the kind of fire department again they came out saved the
day. I hope the authorization comes quickly. The technician's told me
that the wires are still loose and very well could overheat again and
stop forward motion. This was terrified me at one point time not
anymore it just means more annoyance and frustration and hope for
better times.
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