Typical just typical the
holiday weekend and it feels like I'm coming down with a pressure
sore, butt wound as a result from my stupid power chair and most
specifically my stupid cushion. And actually it's probably just
stupid me as I don't have the balls stay off my butt like a good
cripples should. I don't know why it is so hard for me to stay in bed
especially when I know that by doing so I may prevent more serious
damage to my poor benighted butt. I'm afraid of missing out. Not
enjoying the day or more specifically having to “enjoy” the day
from my bed. I just go crazy laying in bed watching the day in my
life go by. The sad thing about my life is that I really not do
anything anyway by sitting up in my chair. I'm able to work on my
computer play on the Internet but I could do that from my bed sort
of. I just do everything better sitting up. I'm hoping that the skin
is not breaking down as much as the skin in the of a good scrubbing.
The weekends or my challenge since I have to go today's without a
shower. I've noticed many times on the Sundays that skin is hurting
like I have a breakdown but accepting it's just the skin need to be
scrubbed. But crossing my fingers and hoping that's what the issue is
and tomorrow with the visiting of Dana, my home health worker, who
gives a great but scrubbed but do so and I'll be feeling better. I
still well take care to not do too much tomorrow to try to give my
skin a rest.
It's crazy I know but
sometimes I look at all the people walking around and you know they
have great butts. They can do anything they want they can set
anywhere they want, for as long as they want and not even get tired
butt. Not me, it is gotten so I have to watch everything that I do
especially going anywhere my power chair. The rocking motion wears on
my butt and I think challenges my skin. I try to do press releases
anyway that I can, and sometimes that helps, I pray for the magic
bullet cushion that someday I will find which will allow me to sit
for as long as I was like and not experienced skin breakdown. I can
deal with tired but but I can't do skin breakdown. That really is the
gateway to the end for many people with spinal cord injury. That
would just love to enjoy the holiday free of any skin issues or any
other issues that matter.
But seriously after
writing all this I am thankful to be where I'm at and doing what I'm
doing at the level I'm doing. I am most likely my own worst enemy and
must work at taking better care of myself. I don't want to leave
myself without a butt to sit on .
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