When I woke up this
morning around 3:30 AM I really thought I was coming down with
something. I felt sniffly and seem to have some challenges in
catching her breath of air through my nose IE clogged the up. But I
stayed in bed till about 6:30 AM by the time I got up is feeling
fairly decent totally surprised. I was about ready to cancel the
whole day. Energized by the good nights sleep I surprisingly realize
that did not have any one dollar bills got dressed and headed across
the street to the coffee shop to buy a cup of coffee (pathetically
since I am going to coffee social at 9:30 AM). So I bought a small
cup of coffee cashing the $20. A dollar in the tip jar to head back
to the apartments.
With some regret I
canceled my appearance at bookclub this afternoon. It was the Utah
Nonprofit Housing Corporation (UNPHC ) retreat. A 4 to 5 hour event
started at one in the afternoon Starting with some kind of a lunch.
Supposedly, lunch is to be catered but finding out that catering
means summering sandwiches cut in 4 inch sections, with assorted
chips and vegetables and cookies at the end. It was where I needed to
be however. I've been on this board of directors for over a decade
and like most boards that I currently sit on I initially became
involved when I was working and that was part of my job description
to work with other agencies and programs that serve to folks with
disabilities. I was sort of surprised at myself at how much I was
involved in this year's retreat. Usually I sit on the back row and
just suffer through the event that this year I actually made comment
particularly around the concept of how disability was represented in
the housing and of Utah nonprofit. I am immensely thankful that the
project has followed the letter of the law which states for every X
amount of units built Y must be accessible and it's usually something
like for every 20 units one must be accessible. I was really
fortunate the place where I'm living now is accessible when I needed
a place to crash. But in the course of the meeting as we went through
what was offered I think we offer over 1000 apartments in the state
of Utah. If my memory serves me correctly 5% would need to be
accessible seems like numbers greater than that I'll have to look it
up Whatever the number is we're not close to the number of accessible
units and especially not wheelchair accessible units i.e. role in
shower etc. It dawned on me that there are a lot of folks with
disabilities, coming down the pike and I mean physical disabilities.
I'm a little concerned that my organization will count mental
health/DD population folks who are ambulatory and do not necessarily
need accessible living scenarios. However, as the baby boomers
advance forget about spinal cord injury but stroke and other
neurological insults are going to happen in these folks are going to
need accessible units… Unless management thinks they're going to go
directly to long-term care and not be housed in the community. I hate
to feel pessimistic but I think As I begin to open my eyes My
organization does not understand the importance of living in the
community with supports and keep in out of long-term care for those
who do not wish to go into long-term care. Interesting, how do I do
this? I think I need to really think about what it's going to take to
bring these people around to my kind of thinking if indeed they can.
Maybe they don't want to hear the truth about what's coming down to
what's available and how this is going to affect everyone and maybe I
have been placed here for a reason. Who the hell knows…?
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